Neuromuscular In memory of Rose Marie.


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Old 11-11-2006, 03:57 AM #1
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Thumbs down Surgery changed

Monday's surgery has been postponed because the anesthesiologist can't be there on that day. It is now scheduled for Tuesday, the 10th anniversary of the death of my son.

I somehow knew all along that this would happen.

I am really glad that the anesthesiologist will be there. we had a long talk and she is willing to work with me. We also discovered that someone put down a drug that I am deathly allergic to as one that I take every day. It would likely have been prescribed for nausea. She also was concerned that I have no pain meds that I can go home on. Right now it looks like plain tylenol or ibuprofen, both of which are useless in my estimation. She saw how upset I was at the preop today and actually thought that I should wait, but it is too close to Christmas already.

Mama

CHANGED NOW TO THURSDAY, MAYBE

Last edited by mamafigure; 11-13-2006 at 11:01 AM. Reason: changed date
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Old 11-11-2006, 10:33 AM #2
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Thumbs up

((((((Mama)))))),

Quote:
We also discovered that someone put down a drug that I am deathly allergic to as one that I take every day. It would likely have been prescribed for nausea.
That 'thumbs-down' should be a 'thumbs-up'. Looks like your Angel child intervened to keep you safe.



See if they can give you a script for the 800mg ibuprofen. It's different than over-the-counter. It actually works pretty good for post-surgery pain.

I don't know what kind of surgery you're having on Tuesday. But, you've got a lot of blessings and prayers coming your way from all of us. And, it looks like your Angel Boy plans to keep you safe and protected.

BIG HUGS (and blessings).

Barb
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Old 11-11-2006, 06:05 PM #3
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Moose,
Thanks. I like the way that you look at things. Mikey and I are still very close. Often when I am down one of his two songs will come on the radio, sometimes even in the middle of another song. I keep a candle in the window for him so that he can always find his way home.

Love to all,
mama
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Old 11-12-2006, 01:15 PM #4
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thinking of you, mamma.
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~Alicia~who feels that four kids with a mitochondrial disease is like patching the Titanic with a bandaid at times, but I say.."SHUT UP, Sit Down and ROW"...
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Old 11-12-2006, 02:53 PM #5
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Thanks, Alicia. How's your daughter?
mama
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Old 11-13-2006, 04:50 AM #6
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Thanks for askin'bout her mamma~

what should have been a ten minute surgery, turned into a hour and fifteen minute. They went in to take out the internal stent, discovered the stone was partially blocking her bladder...and zapped the big stone to small pieces and discovered a "few" other ones in her kidney. Soooooo, now she has until tommorow, an external stent and may have to goback in as early as tommorow( this week for sure if they havent passed on their own) for a lithotripsy of her new stones, followed by a third stent. She's VERY mad at the world right now. I have to agree with her there....a 16 yr old shouldnt have stents!


Never a dull nor boring moment in this house, eh?

What's on your agenda, mamma for thanksgiving?! Any good recxipes to share wit us?!
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Old 11-13-2006, 06:08 AM #7
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Please tell Lauren that I agree with her.

I am making a small pillow and stuffing names inside it of friends like you, so that I won't feel so terribly alone. I'm also making a little pocket and putting a tiny address book in it with phone numbers and email addresses. Perhaps Lauren would like to do the same. I may put some little treasures in it, too.

I have a great recipe for pie crust the secret from my mom. I don't celebrate since Mikey died. Now, with surgery on his anniversary...I hate November.

Maybe Lauren and I can put out a petition to go straight from October to December and eliminate this month altogether.

Love to you,
mama
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Old 11-13-2006, 07:44 AM #8
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LOL....I tend to agree with you, Mamma about November. Isnt it "one of those months"? Lauren if she had her way, would have it December year round. I agree with her..I just love the smell f a good christmas tree, but more importantly...the kindness shared with others~

I love that idea of your pillow. Neat idea! I might have Lauren try to sew one..She needs a great project to work on, other then her computer I love your ideas you have~ Wish we lived closer, Shirley too. I envision us all sitting around a table drinking hot chocolate and laughing so hard!
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Old 11-13-2006, 11:04 AM #9
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I so wish that we were closer - you, shirley, lexi, and so many more. I've got 23 acres...we could build!

Tell Lauren to use fleece - it is warm and cuddly - and no turned over hems. Plus if you make a little pocket out of thin material and tack it inside, you can velcro it shut and no one will know your secrets.

mama
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