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Old 12-16-2011, 03:41 AM #5
Sajal Mondal Sajal Mondal is offline
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Join Date: Dec 2011
Posts: 1
10 yr Member
Sajal Mondal Sajal Mondal is offline
New Member
 
Join Date: Dec 2011
Posts: 1
10 yr Member
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Quote:
Originally Posted by aliena View Post
I have had this condition for 10 years, I am happy to answer questions as best I can. There is little known about the condition you are correct, but I can at least share my experience and what I have learned. Let me know.

Hello, everybody I am Sajal Mondal, my brother in law (Dinobandhu S**) diagnosed with MMN or motor Axonapathy disease by CMC Vellore, India, few months ago. He is only 41 years old and having weakness in his right leg. After that he is received Cyclophosphomide infusion three times, but there was no improvement, between this period he is also effected in his left leg & wastage his right leg and he can't get up, walk, stand or climb stairs, then we again go to Vellore & Dr. Mathew Alexander advised us to take IVIG. Due to monetary problem we come back Kolkata, India and received IVIG (Immunorel) two times under health scheme. After receiving first infusion (under Dr.S.S. nandy) my brother has recover his right leg wastage & his biological changes was seen, after 2nd (under Dr.Sudhir Kumar) he is getting slite improvement but he can’t stand, walk etc & Dr. Kumar said that he can’t walking (99%) for rest of his life. We are going to take 3rd IVIG infusion in 1st week of January’2012. And after that we are decide to go NIMHANS hospital, Bangalore for hire opinion & rehabilitation.

Can anybody tell me about the positive treatment of MMN or motor Axonapathy?
Can he walking alone with or without external mechanical aperaters for go to freshroom or inside the room?
Can he survive from MMN or motor Axonapathy?

Please tell me everything, save his life for name of god & save my little sister’s family, they have a little daughter 4 years aged.
With love,
Thanking you.

Last edited by Koala77; 12-16-2011 at 05:31 AM. Reason: Last name removed for privacy
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