NeuroTalk Support Groups - Weekly Check-in

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Neuromuscular (https://www.neurotalk.org/neuromuscular/)

- - Weekly Check-in - Sept 17th (https://www.neurotalk.org/neuromuscular/943-weekly-check-sept-17th.html)

I'm a little late checking in, but I'm here! Life has been a little too busy the last few weeks so haven't even had time to look for this place. I've missed y'all so much!!! School is going well...love my new position in Computer and Journalism! I'm not as physcially tired as before when teaching, but I am mentally worn out!!! :eek: I did my annual trip with the women at church to Destin, Florida this last week. It was a nice getaway. My breathing is a little screwy, but having IVIG every 6 weeks for a day seems to be helping. I am, unfortunately, still on prednisone but I'm praying to come off of that soon.
My husband is doing well, Teresa has started college and is still in love (her year "anniversary" is tomorrow.) She's been named Missions Director at our church, so her life is staying very busy! Fortunately, for me, she's decided to stay in town for college right now so still living at home. I wasn't at all ready for her to leave!
It's just started cooling down here though it wouldn't be at all strange for us to still have 90 degree days. Right now running in high 70s and low 80s. That could change tomorrow. Leaves are no where near ready to change...we didn't have much rain this summer.
It's good to "see" all of you!!! Hopefully we'll be fully back up and running soon!

Hi Cheryl.... Welcome! I see we both found this site about the same time. It sure will be nice to catch up with everyone. You call 70's and 80's a cool down??? We are sure to get frost here soon and our leaves are beginning to change.
Sandy

Hi guys! It has been sooooo long since I've posted, although Cheryl has been keeping me up to date on things, thanks Cheryl! I've tried logging in with no luck whatsoever, and I've relied so long on my computer remembering who I am I've had to reregister :o

Well, this is the biggest down time yet. Mama, good luck with your surgery, like Alicia, I'm way out of the loop too. (((hugs))) and hope it all goes well. Alicia my dear, I've missed you for so long, even before I stopped posting I was worried. I'm so glad life is going well, but 16! Wow! It'll be a great party :) Sandy, and everyone, it's good to see "old" faces :).

I've been trundling along well. I guess as an update I reckon I've recovered about 80-90% of the encephalitis damage, still get the odd sz but they seem to be pretty much in hand. Migraines come and go, and still think I have something lurking in my system but only time will tell what it is. It manifests every few months as hot sweats, fevers, tingling skin, breakouts, achy joints and weird stuff. My current issue is lower right side pain, had an U/S yesterday and waiting on results. Normally the pain comes and goes - this time it didn't go ;)

Life is good, kids are good, hot and windy and total fire ban. I'm halfway through becoming a basic rural fire fighter! Took the first step and sent a submission off to a literary agent, will wait and see what comes of that *sigh*

Ok, windbagged enough!

K

Hi Kylie, It is so great to 'see' you too. I am glad everything is going well for you. Before I even read the poster name to another thread I knew you were back. Your posts are always so intelligent!
Take care....Sandy