Neuromuscular In memory of Rose Marie.


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Old 09-17-2006, 02:00 AM #1
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Default Weekly Check-in - Sept 17th

Hi friends,
I was just writing on another forum and realized that the weekly check-in is what is holding that group together. We have some amazing people here, but no one is saying anything. I'll start this one.

Here in the holler it has gotten cooler. Fog drifts through every morning and evening, making it difficult to avoid the possums and deer that test our driving skills. A few leaves have even started to turn, although the foliage display is nothing compared to what the north is experiencing.

Last week my daughter had oral surgery - and for the first time she was treated very well.

I am still pretty sick. I have been trying to avoid the ER. I have a promising dr visit on Monday, but it is an hour away and I don't know how to get there. The idea of driving an hour is scary. I am afraid that he will put me in the hospital...and that really freaks me out.

I hope that you are all enjoying the impending change of season. Some of my favorite times were spent with my dad or grandfather on our biannual walks in the woods. They would tell me about their childhood, tell me how to identify trees, flowers, and it just seemed like a special time, even then.

Take care and do tell what's happening in your life,

Love - Mama
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Old 09-17-2006, 06:52 AM #2
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Good idea, Kathy.

Our leaves are changing and it has been cold and dreary for this time of year. Thanksgiving is Oct. 9th this year and that is usually the end for the leaves here.

I am still trying the tegretol, but having some side effects like muscle cramping and itching. I hope they are the type of side effects that go away. At school my class is a challenge this year!

Good luck with your appt.

Shirley
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Old 09-17-2006, 07:32 AM #3
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Why do they always have side effects? I sure hope that they go away and give you some peace.

I love it when the maple trees turn. In Utah the color of fall was yellow with some dark red from the scrub oak...not real pretty, but all right. Here everything turns, but it seems to rot first. Definitely not so pretty. Living in the north spoils you for any other location when it comes to fall.

I will email you.
mamakathy
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Old 09-17-2006, 09:59 AM #4
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Still hot and steamy down here in florida , I sure miss being up north this time of year. My big chance will come in October with a trip to Cleveland with my oldest two. Im looking forward to our biannual trip to the Cleveland zoo!

Im very tired this week. My ankles are hurting, my balence is off....and it looks like January for my next MDA visit in Miami. My seizures are still same. Kids are ok~ it could be a whole lot worse I know.

Took a trip to Sea World last weekend, and I truly think that's what did me in this week.

I also had my second meeting for UMDF foundation. I began, along with another great lady...a support group here in town for mito patients. It was really alot of fun!
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Old 09-17-2006, 10:46 AM #5
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Still here and trying to plod on with life.
The weather has gone weird even for England, its warmer now than it was in the summer.
Gillian
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Old 09-17-2006, 10:49 AM #6
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Here in New England the weather keeps going back and forth between beautiful sunny days in the low 80's and wet rainy days where the temps drop to the low 60's or high 50's. That's normal for this time of year here, but the constant changes certainly don't help my pain.

Other than the weather, things here are pretty much the same. Hubby is still cancer free, my symptoms/pain are not flaring too badly at the moment and the meds seem to be working (although I'm still on the diagnosis roller coaster), and life in general is pretty good.


mama, I'm so sorry to hear that you are not feeling well. I do hope that you are able to get to your doctors appointment, and that the doctor is able to help you feel better without having to go to the hospital. I will send many positive thoughts and good wishes in your direction for you.

shirley, I hope that the tegratol side effects go away as your body gets more used to the medication. I think I have seen others say that they had initial side effects from tegratol that did go away with time, so I'm hoping that is the case for you.

ktm - I hope your trip to Cleveland goes well. I have never been to the zoo there, but I hear it's wonderful. I'm sorry to hear about the ankle pain and balance troubles you are having, and I hope that it is just a temporary flare that subsides soon.


take care,
Liz
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Old 09-17-2006, 05:12 PM #7
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Alicia,
So sorry that you are having troubles. I hope that the zoo brightens your day. I love the zoo except for the monkey/ape cages. They are so sad, and you can feel it.
k
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Old 09-17-2006, 05:13 PM #8
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Stumps, You sound so sad. Please write some more. We barely know you.
mama
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Old 09-17-2006, 05:14 PM #9
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Witt,
Sounds like things are looking up for you...and I am so pleased. You and your hubby deserve the very best.
mamakathy
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Old 09-18-2006, 07:07 PM #10
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Quote:
Originally Posted by mamafigure View Post
Alicia,
So sorry that you are having troubles. I hope that the zoo brightens your day. I love the zoo except for the monkey/ape cages. They are so sad, and you can feel it.
k
I LOVE the apes/Gorillas...I love to look them in the eye. It's so peaceful to me to wonder what they think~ Although, I must admit...Id much rather see them in the wild. that Zoo is such a treat for the eyes!

Im so glad to be back here. I sure missed everyone.
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