This all just started for me about 3 months ago. I thought I needed dental work,then I thought I had sinus problems. I was told I had TN or TMJ. After seeing a different doctor I am told and agree that I have Atypical TN. All my symptoms point to this.
I guess my first question is how do you deal with the fear and hopelessness that comes with TN? I am scared. I can't imagine going through life with this constant pain.
I have yet to see a neurologist. I have seen the dentist and my primary and an ear,nose throat Dr. What should I ask the Neurologist? I am not in the city so the Dr's are less familiar with TN. Any tips on how to talk to this Doctor would be helpful. I really have to advocate for myself or I don't get anywhere with these Docs'. I was told by my GP that she thought it was TN when I saw her this summer. She never said a word until 2 weeks ago! After many phone calls and armed with some info I am getting help.
One more thing, has anyone tried acupuncture? If so what were your results?
I know this is long but I have so much on my mind.
PS...I just had a huge stress in my life any chance that when I heal emotionally this could go away?

Thank you so much,I feel for everyone with this horrible thing!
A.

Hi A and welcome to NeuroTalk. Here is the link to our TN forum..http://neurotalk.psychcentral.com/forum26.html

I'm sorry you're having to go through this.

A big Welcome! to you. I see you have been directed to the right place
so have a long look around as there is much to be learned. We will
be here if you need us.

Welcome to NeuroTalk. I'm sorry for the pain and what you're going through with the TN. Take care and feel better soon.

Welcome to NT

There's tons of info here. Take your time and look around.

No question is too silly.

I'm sure the TN form has lots of caring people who can identify more with your situation. I understand TN can be very debilitating. I hope you get the best of care.

welcome to NT. i'm sorry about the pain you're going thru. it sounds like you have good drs. i'm not familiar with TN.

i hope the TN forum can help you.
good luck with your appt.
it sounds like you're a good advocate.

hang in there.

Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

Darlene

Thanks to all that responded to my post.

I posted on the TN board as suggested.

Thanks again!

I went through the same thing. I was in my doctors office every week. I even went to the dentist and told him that allmy teeth were hurting and he took x-rays everything was great. i went back to my family doctor and he told me that over 8 months of this problem there is nothing else he can give me. We were at the bottom of the barrel. He did a scan of my head and he told me yes I had a sinus infection and he sent me to an ear,nose and throat doctor. he looked at my scan and told me that I did not have a sinus infection. i had a deveated sceptrum and bone spurs. he did surgery on July 20th. after 3 months. i can breath again and no pain. He said that I had spurs the size of a whole cashu. He said I will feel wonderful in 3 more moths. It take 6 months to heal. I can't wait to see what happens in 3 more months. Maybe that is something that you should check out. Sandra