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Old 10-23-2009, 10:20 AM #1
diadams1 diadams1 is offline
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Cool RSD and Nerve stimulator

Hello all. My name is Diane Adams I had surgery in December of 09 to restore blood flow to my bottom leg and foot on the left side early december. This surgergy was to be out patient go home the next day. Every time I woke up I was screaming in pain so they just kept knocking me out not knowing what was wrong with me. My husband told them to quit knocking me out so I could talk to him an the kids. They stoped and I kept screaming non stop so they started the morphine and deladid shots. I was in the hospital for a month and a half then was sent to rehab to learn to use a wheel chair and walker. I just got my court date for disability Sept. 22. They gave it to me due to my pain forms my doctors filled out about me going to the hospital for morphine shots all the time. My attorney actually gave me my diagnosis of RSD at that time. my doctors never gave me a diagnosis. I have figured by reading online that I am now in the second stage of this. Has anybody had a nerve stimulator implanted in their back? I am suppose to have one done soon to relieve some of my pain. I pray it helps if the doctors can get rid of half my pain I can control the rest with mind over matter!! Please respond about the nerve stimulator I am worried and excited about this... Diane Adams
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Old 10-23-2009, 10:52 AM #2
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Hi Diane and welcome to NeuroTalk. I'm so sorry you are having such pain. Here is the link to our RSD forum

http://neurotalk.psychcentral.com/forum21.html ..lots of good information there.
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Old 10-23-2009, 03:42 PM #3
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Welcome to NT

So sorry you're suffering.

There's lots of info here to research about the stimulators and RSD. Loooots of info. Alffe gave you the RSD forum. That's a great start so you can compare your symptoms.

I would like to suggest you keep a dairy right now, with the help of family too. I'm holding out it's something else and not RSD.

Are you sure your procedure itself don't have something to do with your painful state? unintentional and maybe unexplainable, but onset was immediately after it. It's hard to pin some things down if they can't see it on x-ray and can't correct it. I'm assuming the surgeon and doctors are saying this is not a "normal" side effect/risk for the procedure you had.

I've heard mostly good about stimulators. Patients usually know and doctors are specific about the diagnosis and the prognosis. I guess my point is, don't grab at anything, especially invasive, until you're sure. Believe it or not, it could get worse if they don't know for sure. Just be cautious. I hope I don't cause you anxiety I just feel you need to be aware and guard yourself here.

Lawyers see a lot of suffering too, but you need a doctor. Pain management doctors are the trend nowadays to evaluate and treat painwrecked conditions. That's an adventure too, if you're not already there, but thank God for them. They did give me relief. I just never liked my situation, I guess. Just needing pain management says a lot, don't it?

We're here for you. No question is too silly.
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Old 10-23-2009, 06:01 PM #4
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Welcome to NeuroTalk Diane!
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RRMS DX 01/28/03 Started Copaxone again on 12/09/09
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Old 10-24-2009, 12:50 AM #5
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Welcome to NeuroTalk. Great to see you have come to be with our loving group. There are a number of friends will to assist as we can. Just let us know how we can be of any help. We are all here to assist each other as possible.

Again welcome, looking forward to seeing you around.

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Old 11-15-2009, 07:59 PM #6
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Quote:
Originally Posted by diadams1 View Post
Hello all. My name is Diane Adams I had surgery in December of 09 to restore blood flow to my bottom leg and foot on the left side early december. This surgergy was to be out patient go home the next day. Every time I woke up I was screaming in pain so they just kept knocking me out not knowing what was wrong with me. My husband told them to quit knocking me out so I could talk to him an the kids. They stoped and I kept screaming non stop so they started the morphine and deladid shots. I was in the hospital for a month and a half then was sent to rehab to learn to use a wheel chair and walker. I just got my court date for disability Sept. 22. They gave it to me due to my pain forms my doctors filled out about me going to the hospital for morphine shots all the time. My attorney actually gave me my diagnosis of RSD at that time. my doctors never gave me a diagnosis. I have figured by reading online that I am now in the second stage of this. Has anybody had a nerve stimulator implanted in their back? I am suppose to have one done soon to relieve some of my pain. I pray it helps if the doctors can get rid of half my pain I can control the rest with mind over matter!! Please respond about the nerve stimulator I am worried and excited about this... Diane Adams

I have been suffering from R.S.D. for almost 2 years now. With 35+ nerve blocks and a surgery removing nerves I am now in a much better place. I don't know information on the nerve stimulator but I do know about R.S.D. if you have any questions about what helped me let me know. I know how alone I felt even with family. Doctors and nurses never believed me in the beginning and that was rough so I know what you're going through. Stay strong you WILL get through this awful thing.
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