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Old 01-11-2010, 06:31 AM #3
glenntaj glenntaj is offline
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Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
glenntaj glenntaj is offline
Magnate
 
Join Date: Aug 2006
Location: Queens, NY
Posts: 2,857
15 yr Member
Default The interesting thing is--

--we have another, fairly famous Liza Jane on this forum who was greatly responsible for putting together the spreadsheets for tracking/suggesting tests that can be done for neurological symptoms. These can be found at:

www.lizajane.org

I sympathize with your predicament, and the confusing messges from doctors. A lot of the symptoms you describe can come from many possible conditions--Lyme is a great mimicker of things like neuropathy, MS, B12 deficiency--and they themselves can mimick other things. It's often very hard to distinguish if symptoms are coming from the brain/central nervous system or from the peripheral as the symptoms can be experienced exactly the same.

Can you tell us what tests you have so far, and what the results were? You may be well aware that the diagnostic cirteria for many of these conditions are in some dispute, especially the MRI criteria for MS and the serological criteria for Lyme--and the MS and Lyme boards here have lots of discussion about that. It's part of the reason that many of us like the aforementinoed spreadsheets--they help to suggest other avenues to doctors as well as track our own results, (And you must ALWAYS get copies of all test results you have had, to keep for your own reference and to copy for future doctors.)
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