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Old 01-11-2010, 06:18 PM #1
andydjx andydjx is offline
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Join Date: Jan 2010
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10 yr Member
andydjx andydjx is offline
New Member
 
Join Date: Jan 2010
Posts: 1
10 yr Member
Default Newbie with a confusing case...help please

Hello there--

About 3 years ago I started getting widespread fasiculations. About 2 years ago atrophy showed up in my thenar/thumb muscle. I get exertional weakness, where my muscles will "die" after some exercise, but the strength usually returns within a few hours.

Some of these symptoms sound ALS-ish, but my doctors don't think so and I've had 3 EMGs that didn't indicate ALS. However, the last EMG showed that I had slowed latency in the Nerve Conduction Test in my arm, leading the doctors to say I had a slight peripheral neuropathy, which leads me to this board.

I also get problems with my eyes where my vision flickers, particularly when I wake up, go from a dark to light room (or vice versa) or watch a movie in the theater. This also comes with visual snow, floaters and temporary blind spots. I get mild tinnitus and have had countless episodes of parasthesia. I wake up every night with ring and pinkie fingers asleep, often times on both hands.

I suffer from migraines, I'm a survivor of childhood cancer (hodgkins disease) and I got a compression fracture to my neck a few years back as well. I take levoxyl for thyroid replacement and I get regular check ups for aortic stenosis in my heart and slightly dilated valves. I also have osteopenia in my spine and my bones crack like woah.

I sound like a wreck, huh? Ha; I'm actually a relatively healthy 27 year old male... most people around me have no idea that anything is wrong, and I can function fine in my life day to day. But at the same time, I know there's something wrong with my body...if it was just the twitching all day I would have gotten used to it by now, but it's the twitching +atrophy + weakness after exercise that has me particularly concerned.

If anyone has any ideas, I'm all ears! (Those are still functioning pretty well)

I'm gonna put this in here because I've never seen an emoticon group hug. Boo ya

Thank you in advance for any feedback.
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