Hi :
Does anyone know why some people need 2 shunts. Our 13 year old son has had more revisions than I can count and he is still having terrable headaches that never go away. His surgeon seems to be ok with it but he's not the one suffering. We are going to see him on Thursday and was wondering if anyone could give me some info before we go. Thank You..

Welcome to NT

So sorry you all are going through this.

Here the brain forum.

http://neurotalk.psychcentral.com/forum92.html

There's a lot of questions about shunts. I'm sure they'll be glad to help you figure it out.

I pray things go well Thursday.

Hi and welcome to Neuro Talk,

I am sorry your son is going through this, it must be very hard on you all.

I can't help with any of your questions, but if you follow the link in the above post, there will be people who know alot more about this than I do, and will be able to help you out.
Everyone here is very helpful and caring,
I hope all goes well with the surgeon on Thursday,
take care
Kate

Hi, and welcome to NT! We're so glad you found us.

This is a great place with lots of friendly, caring, and helpful people.

I wish your son all my best.

Hello and welcome to NeuroTalk. Great to see you have come to be with us. Just let us know if we can be of any help.

Again welcome, looking forward to seeing you around.

Darlene

[what makes the shunts get to the point i've had sever pain for five days but i'm on house arrest so i don't know how to get to the doctor i've had mine for a year now and they have only donw the normal exrays and what not and a spinal tap then the famous spinal taps and lets tap the shunt them send ya home and you'll be fine i almost hate going to the er anymore its always the same things god bless your family i hope it gets betterjenn

Welcome to NT

So sorry you're having these problems.

Here is the traumatic brain injury forum:

http://neurotalk.psychcentral.com/forum92.html

I hope you get some relief.

Thank you for your service and so sorry you are wounded.

hi
try push for the latest technology I am no expert but have csf issues see if your surgeon is using the latest technology eg programmable shunt, shunts are old technology in as much as they just act as a pressure relief valve , the new programmable shunts can be adjusted without surgery for therapy and pain control I was a engineer for 30 yrs,a shunt is just basic hydrolics trying to control a very complex system

there is need for a better device I have blue prints for such a device which is free to anyone who is interested and is with a research organization now, but with any medical device research and development is always a problem

best wishes

hydrocephalus - I was 13 when my shunt failed and it hurt!. it took them a while to find a solution since my ventricals are small, they ended up doing an LP shunt in the back. that was twnty years ago. i had twisted it twice right after getting out of the hospital. i am since fine but never sought check ups which was a dumb move on my part. small pains since then only. but alive and proud of it.

I can sympathize with his pain, i was sedated on codeine but i remember my Dad and my brother coming to visit. I didn't talk much but it give me some strength to pull through knowing they were there. be relaxed and calm.

Hi ,
This sounds very scary as my daughter has a shunt since two weeks ater birth, this has been an extremely unsettling time for us as our residency application for nz has been declined with regards that they find our daughter of unacceptable standard of health and they cannot say as to when a revision would be needed or as to what complications she might expeirience. To us she is a miracle from God and I believe that by his stripes she is healed and he wil continue to perfect all that is wrong. Our daughter is beautifull and normal just like any 16month infant her age, she has had no complications thus far and continues to meet all milestones. I do know that each individual is different and each show various signs, but I trust that God will continue to see her through this, I pray that there is away around the residency part as I feel that her being born here should also be a factor in her obtaing residency and that she should not be declined for the reason of waiting for someday that something might or could go wrong.

I do hope that there is someone in nz that has had similiar problems to assist me as to what my next step should be.