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Kathie Glenn 03-23-2010 12:12 PM

Thank you so much for welcoming me! I learn so much by reading what others have written. Kathie

Kathie Glenn 03-23-2010 12:13 PM

[QUOTE=redtail;633391]Hi Kathie,


Thanks so much Kate for the new website address. I will check it out today.

Kathie Glenn 03-23-2010 12:14 PM

Thanks Darlene!

Kathie Glenn 03-23-2010 12:14 PM

[
Thanks MaryAnn!

Kathie Glenn 03-23-2010 12:15 PM

Your birds are beautiful. Thank you so much for the kind welcome.

Kathie Glenn 03-23-2010 12:17 PM

Quote:

Originally Posted by MelodyL (Post 633793)
Well, if you can avoid driving, I would certainly do that.
Oh, Hi by the way, my name is Melody and I'm married to a man with severe neuropathy in both feet. That's why I mentioned the driving.

First, welcome to our little group of nice people. You will get all sorts of good info here.

Let me tell you a bit about my husband.

My husband drove until about 9 years ago. His feet have been getting numb and number for almost 20 years.

So I had no idea how numb his feet were until the day we got in the car, he put his feet on what he thought was the accelerator and stepped on the brake, and then he couldn't tell which was which.

I demanded that he stop driving that day. He did, he gave back the car, and that was that.

When you can't be sure of your driving, well it's something to think about.

You don't want to get into an accident and have any more problems, right?

So here's hoping that things clear up for you and your vision stabilizes, but if it does not, then please think about what I said.

Take care, Melody

Thank you, Melody. I will certainly keep that in mind.

Kathie Glenn 03-23-2010 12:24 PM

Quote:

Originally Posted by MelodyL (Post 633796)
Hi, I just looked up Temporal Arteritis on Healthline.com and read about it and found the following (you did indicate that you wondered if you could have this, right?)

Here is what it said:

The disorder may develop along with or after polymyalgia rheumatica. Giant cell arteritis is seen almost exclusively in those over 50 years old, but may occasionally occur in younger people. It is rare in people of African descent. There is some evidence that it runs in families.

Maybe you could ask your primary care about this or do some further poking around on Healthline.com. I hope you get some answers.


take care, Melody

I do wonder because my mother has it and my great great grandmother went blind in middle age and of course back then they didn't know why. That is also a side effect of TA. I am going to MUSC next Wednesday 3/30 to my neuro-muscular neurologist to talk about some of these issues. They are wonderful, but I want to make sure I have what I have been told I have. Also, someone mentioned to me that since I had my MRI way back one he beginning of all of this (11/08) that I may need to have another one. Will keep you posted and again thanks for caring. kathie

Ms Lou 03-23-2010 02:15 PM

Good Afternoon,
I am a Stage 4 Ovarian Cancer survivor suffering from extreme neuropathy in my hands and feet caused by chemotherapy that saved my life. I have been Cancer Free for 14 months now and was in a double blind drug study which I finished less than 60 days ago. The pain from the Neuropathy is 24/7 even with pain meds. My Oncologist prescribed some cream that I have been using for about a month now that helps somewhat but wondered if anyone has experience with chemotherapy induced Neuropathy. I have been told there is a possibility it will go away or at least get better with time. Has anyone had that experience and if so how much time passed before it got better? I do Physical Therapy 2X per week which is very painful and I don't drive due to the numbness as well as taking pretty potent pain meds on a regular basis.
Thanks for any feedback.
Ms Lou

mrsD 03-23-2010 02:33 PM

Hello, Ms.Lou

We have had several people on PN forum with chemo induced PN.

I have posts there with potential things to try, based on some medical studies.

example:
http://neurotalk.psychcentral.com/sh...arnitine+chemo

and
http://neurotalk.psychcentral.com/sh...arnitine+chemo


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