NeuroTalk Support Groups - peripheral neuropathy or RSD?

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Quote:

Originally Posted by kellyevans40 (Post 635014)

my podiatrist told me that in 6 weeks I would be able to do everything I did before surgery only better and pain free, I still have not been pain free.I have told my podiatrist every thing thats going on, I can not bend or flex my toes the discoloration the pain he just tells me this is normal and the pain is something I just have to work through...he actually laughed at me a big laugh:mad:
and said you need to quit investigating online and leave the doctoring to the doctors hahahah he than said that none of my symptoms fit with nerve damage and I probably have a very low pain threshold:o
Kelly

..........I was trying to think of a 'polite' way you could tell this
FOOT doctor to stick his 'profession' where his mouth is....:p

I'm glad you've moved on....... He obviously didn't have your future best interests at heart.........

Good luck with your current testing!

well I went to my first physical therapy appt today, and she said to me this looks like the beginnings of RSD:( She treats other people with RSD, instead of just a consult today she started right away with therapy, electric stimulation,and light messaging somewhat painful!!! but she says she wishes I had been sent to her much much sooner. She said remmision is best with early treatment so she has me comming in 4 xs a week she's not sure weathr or not this will work but that I must get and keep as much mobility back in my foot as possible and even though it's very painful to exercise this foot as much as I can, she wrote a note to my second neuro I will see March 29th telling her what she thinks. She said something about using ultrasound next time I go?
Crssing my fingers hoping it's not to lte:smileypray:

I think it is RSD

When I read your post, I was aware of how many of your symptoms were identical to what I went through. My foot did the same thing at the doctor's office, the purple color, and the temperature change. One of my first symptoms was that I could not handle even the weight of a bed sheet on my left side of my body. It caused a lot of pain. I have a problem with my left side in that I have intense sensation. I can feel my left eye moving around, my left nostril, my left ear, etc. One thing you mentioned was the drug cost. I was laid off of work in December, and am now on my husband's medical insurance. However, this is a preexisting condition, so his insurance will not cover anything regarding my RSD for this year. My doctor's office contacted the drug companies for compassionate care, and now I get my Neurontin from Pfizer Drug Company at no charge. If you have no drug coverage, talk to your Doctor's office for help.

i joined this forum bc my dad has RSD. it's horrible.

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Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number of fellow members here to assist as possible. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene :hug:

Welcome Kelly and Welcome Kimmie,
So glad you found us. We all try our best to help, and learn from each other too. We all need to vent, that's normal.

There are so many helpful people at NT, we support each other. :)

Kelly, I hope your foot and ankle problem gets better soon with the PT and their equipment. It really helps after surgery. Good luck to you.

Kimmie, I am sorry to hear that your Dad suffers from RSD. I have read and heard how painful it can be. You are a lovely daughter to join here for your Dad.

Nice to meet both of you.

Yeah. Thanks for the welcome. My dad started having problems right after he broke his foot. It was a stress fracture as he got while he was running. Then he was misdiagnosed. They almost amputated. Then, thankfully, they figured out what it was.

Good luck Kelly.
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I am late but wanted to welcome you to NT. I'm glad so many caring folks are here to give you support and advice! I am so glad you are starting your physical therapy and hope it starts to give you so comfort very soon! :hug:

This sounds like my foot!

Quote:

Originally Posted by kellyevans40 (Post 634885)

Hi, I am new here. I was wondering if maybee some of you who are going through this could help me. I had surgery 3 and a half months ago on my foot to remove a Mortons neuroma. Now I cant bend or flex my toes, I have pins and needles 24/7 , And so many weird pains sometimes it feels like someone is sticking me with a really long needle, then at times it burns, sometimes it feels wet sometimes it feels like my sock is full of sand. I cant cover my foot at night with a blanket it feels rough and really heavy, when I take a shower(which now is maybee twice a week) the shower water feels like someone throwing rocks at my foot at times my foot will turn a blue/ purple color and feel like it's on fire but when I touch it it's cold cold.Just when I think I've experienced every kind of pain imaginable in this foot last night it felt like some one stuck a butcher knife in my ankle and ripped my skin all the way up my calf???? today that pain now feels like my skin is ripping apart. My neurologist thinks I have peripheral neuropathy, but is sending me to a professor of neurology at USF to have an EMG and nerve conduction test. when I saw her my foot turned purple right there in her office and she said it was colder than my other foot, but she did'nt know why. She gave me a prescription for lyrica, wow expensive, I have read alot about Lyrica and am weary of trying it. Sorry this post is so long I have no where to vent or ask questions. Do you think this sounds like RSD or peripheral neuropathy? any help I feel like I am going crazy
thanks Kelly:eek:

My foot suddenly started to have a great deal of pain in the forefoot then nerve pain all over, so I can't step on it without Gabapentin or put a shoe on at all. How did you make out with your diagnosis?

Welcome to Neuro Talk. I sure do understand what you are experiencing. It is one or the other also for me. Not sure which one. The doctor I see is a physiatrist/pain specialist. I get a lotion which is no fun to rub in, but it gives me hours of blessed numbness. PM me and I will list ingrediants. I know alot of people get the DX. In my case, the doctor said it would be treated the same way, with the lotion and narcotic as needed. Got this after a surgery as you did. I really wish there were more of an answer, and difiniative way to treat this, but from what I understand the doctors don't really know how it works. Alot of people get a biopsy as well. This site can sure offer comfort and some compassion. NT will be here for you, and so will I. ginnie:hug: