New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 03-21-2010, 02:33 PM #1
JWerky95 JWerky95 is offline
New Member
 
Join Date: Mar 2010
Location: Wisconsin
Posts: 4
10 yr Member
JWerky95 JWerky95 is offline
New Member
 
Join Date: Mar 2010
Location: Wisconsin
Posts: 4
10 yr Member
Default NBCCS/Gorlin Syndrome

Hi I returned to neurotalk after being gone for years. I was looking for information on memory loss related to colloid cyst in the 3rd ventricle. I was diagnosed with Nevoid Basal Cell Carcinoma Syndrome, and the colloid cyst in 1990. Had brain surgery to remove the cyst at Mayo Clinic 12/13/90. Have had numerous Basal cell carcinomas removed over the past almost 20 years, and 13, or 14 surgeries on my jaw/sinus cavities to remove cysts.

I have been struggling with memory/retention problems for YEARS!! I am trying to obtain my associate degree in nursing and it has been a STRUGGLE. I am not sure if it is due to the surgery in 1990 or if it is related to the colloid cyst that is currently in my third venticle that we are monitoring and have been since it was found 9/9/99. I will post in the colloid cyst area to see if some one there can help. I just wanted to stop here and introduce myself.

Thanks for the invite.
Jenni
JWerky95 is offline   Reply With QuoteReply With Quote

advertisement
Old 03-21-2010, 02:40 PM #2
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Default Hello Jenni!

I'm sorry to hear of your struggles!
My heart goes out to you....

Although I'm not very familiar with your particular condition, I know that other's will be along shortly who will gladly point you to one or more of the forum's here that would best suit your needs......

Caring
Rae
Rrae is offline   Reply With QuoteReply With Quote
Old 03-21-2010, 02:58 PM #3
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

Quote:
Originally Posted by JWerky95 View Post
Hi I returned to neurotalk after being gone for years. I was looking for information on memory loss related to colloid cyst in the 3rd ventricle. I was diagnosed with Nevoid Basal Cell Carcinoma Syndrome, and the colloid cyst in 1990. Had brain surgery to remove the cyst at Mayo Clinic 12/13/90. Have had numerous Basal cell carcinomas removed over the past almost 20 years, and 13, or 14 surgeries on my jaw/sinus cavities to remove cysts.

I have been struggling with memory/retention problems for YEARS!! I am trying to obtain my associate degree in nursing and it has been a STRUGGLE. I am not sure if it is due to the surgery in 1990 or if it is related to the colloid cyst that is currently in my third venticle that we are monitoring and have been since it was found 9/9/99. I will post in the colloid cyst area to see if some one there can help. I just wanted to stop here and introduce myself.

Thanks for the invite.
Jenni

Hi, just wanted to extend a hearty welcome

I went over to the other forum and saw you posted there. You'll get good info.

We're a nice bunch of people who like to help each other.

Take care And may I say God Bless You for continuing to do what you do.

You are remarkable.

Melody
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
Old 03-21-2010, 03:06 PM #4
JWerky95 JWerky95 is offline
New Member
 
Join Date: Mar 2010
Location: Wisconsin
Posts: 4
10 yr Member
JWerky95 JWerky95 is offline
New Member
 
Join Date: Mar 2010
Location: Wisconsin
Posts: 4
10 yr Member
Default

Thank you Rae.
JWerky95 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (03-22-2010)
Old 03-21-2010, 03:07 PM #5
JWerky95 JWerky95 is offline
New Member
 
Join Date: Mar 2010
Location: Wisconsin
Posts: 4
10 yr Member
JWerky95 JWerky95 is offline
New Member
 
Join Date: Mar 2010
Location: Wisconsin
Posts: 4
10 yr Member
Default

Thank you Melody!
JWerky95 is offline   Reply With QuoteReply With Quote
Old 03-22-2010, 12:04 AM #6
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Heart Welcome back Jenni

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great number of fellow members here to assist as possible. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Stiff-Person-Syndrome/Stiff-Man-Syndrome? Any info? sharry50 Autoimmune Diseases 4 04-21-2012 01:10 AM
Sicca Syndrome/Sjogrens Syndrome darlindeb25 Autoimmune Diseases 4 04-01-2010 06:53 AM
TOS 101 - It's a SYNDROME beth Thoracic Outlet Syndrome 11 07-28-2007 03:28 PM
Restless Less Syndrome Isis Bipolar Disorder 2 10-27-2006 05:03 PM


All times are GMT -5. The time now is 07:31 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.