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Old 04-16-2010, 10:51 AM #1
K9ja K9ja is offline
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Default another newbie

Hello fellow MGers!

I feel very fortunate to have found this site!!! I was diagnosed with MG two weeks ago. I am on 60mg of mestinon 3x daily (thinking I should maybe do 4?)

What a frustrating experience so far ... one year for diagnosis ... I went from teaching Martial Arts / backpacking / tournament softball / etc to NOT BEING ABLE TO DO ANYTHING I would fall if I tried to sprint / I went from being a top level hitter to striking out (in slowpitch!!!) eyes drooping / no smile / etc etc. My symptoms came on within a two week period (normal??)

With just two weeks of treatment I feel 1000% better but I wonder if I will ever return to the level I was. I can finally lift weights again / started jogging (wow did cardio go away quick) / close to sprinting / no drooping eyes / actually smile again. I haven't tried hitting yet but plan to this weekend (fingers crossed)

CAT scan for thymus is scheduled ... was told 70% of thymectomies result in complete recovery from MG ... it just goes away!??? I guess this whole thing can just go away as quickly as it came on?? what do any of you think?

I am a K9 Handler (explosives/narcotics) and I have been hiding this whole thing for a year!!! I was very close to retiring early because I knew eventually my safety would be in jeapordy. I finally feel safe again. I know if a "struggle" happens I now have the strength (again) to protect myslef as well as others....WHEW

What a relief to find you all ... LOVE U GUYS already

Joe
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Old 04-16-2010, 11:14 AM #2
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azoyizes azoyizes is offline
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Hi, and welcome to NT! This is such a great place with so many friendly, caring, and helpful people.

We're glad you found us!

I'm going to take a shot here and guess that MG is Myasthenia Gravis. Below is a link to the forum. If not, let me know and I or someone else would be happy to direct you where you need to go.

http://neurotalk.psychcentral.com/forum77.html
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Old 04-16-2010, 11:24 AM #3
K9ja K9ja is offline
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yes it is and THANK YOU
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Old 04-16-2010, 12:47 PM #4
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Default Hi K9 ~

Hello There!

.........well, I'm glad we got the abbreviation correct but I'm sorry that has to be the reason we meet!

Your post actually is inspiring! You are a GO-getter! ......makes me wanna get up off my #$% and do a flip or something

You will find so many caring people here, and more support than you'll know what to do with! Becoming a part of this forum is the best medicine I've found...

NEVER give up your dream!

<<--- Dat's right, Joe!

Caring
Rae
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Old 04-16-2010, 01:02 PM #5
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Wow, Joe -- sounds like they could have made a reality show about your life. You've been so active and involved -- good for you!!!

Sorry for your diagnosis of MG, but glad you are taking it as a challenge to overcome.

Welcome to NeuroTalk!!!
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