Hello everybody. I have never done this before and I hope that this is helpful to me. I have had terrible neuropathy pain for about a year now. I am on Neurontin and I still struggle everyday with pain and numbness. I have no diagnosis. My doctor keeps increasing my Neurontin and I feel better (more tired) for a few days and then the problem comes back. I struggle with both of my feet, my right hand, and occasionally my tongue. I feel like I am crazy because of all the pain and meds. I cannot stand the touch of sheets on my feet if there is a crease. It feels like knife. I put special socks on my feet because they feel frozen, but I cannot keep them on because they will start to hurt my feet. I have shooting pain that takes my breath away when it shoots up my foot or leg. This all started with just a little numb spot on my right index finger. I am at a complete loss. I don't know what to do. I feel like my whole family is suffering because of this. It is hard to take care of my 2 and 3 yr. old. I am thankful that I found this web page during my google search tonight. I hope to hear from some of you soon.

Welcome to the Neurotalk forums. Very happy to have you. I read your thread and it struck a very strong chord in me. I too suffer from an illness that is undiagnosed. I've had it for nearly five years. You said that your condition started with just a little numb spot on your right index finger. Mine started with just a tiny sensation in the left side of my abdomen, no bigger than a couple of centimeters.

Over the years my condition has progressed, and I've had some strange symptoms at times. But the way you describe the pain in your feet and the shooting pain in your leg sounds very much like a recent episode I had with my left leg. The whole leg was so sensitive that even the slightest pressure caused excruciating pain. I couldn't wear socks because the elastic in the part above the ankle squeezed the leg too much. For days I couldn't even sit or lie down, so sleep was almost impossible.

I've also had numbness in both legs, and pain in my side and lower back muscles. My condition is obviously not identical, but I've been searching the computer and reading posts for four years, and what you described sounds similar enough to really pique my interest. I even took Neurontin for two years before it finally lost it's effectiveness.

I would love to compare symptoms, tests, doctors, meds, etc. and see if there are more similarities. I've been to 26 doctors and specialists so far, and may soon be going to the Mayo Clinic if I can work it out.

Anyway, I sure hope you find something to lessen your misery, because I understand how tortuous it all can be. If there's anything I can do to help, I'm perfectly willing.

Very Best Wishes,
Idealist

hello Jennysue,
Welcome to the forum. If you need any help finding your way around or have any questions just ask.

Hi Jennysue.
I am new here, as well and I hope you find some answers and some peace here.
Leisa

--come on over to the Peripheral Neruopathy part of Neurotalk and tell as much of your story as you can; good expertise over there.

Welcome Jennysue! Glad you found us.

Hi Jennysue and welcome. I hope you take glenntag up on that advice and find a nice soft spot to land. I'm sorry for your pain.

jennysue

lots of helpful people here. tons of support and info. if you need any help finding your way around...we are here.

Hi: I've been having knee pain about one year after having my premarin lowered in dosage. I feel that I have rhuematoid; because have had arthritis since about age 18. Have not been properly diagnosed. Tested borderline for lupus at one time. Now realize that the fact that I get sick from products containing gluten. Has this been noticed by a lot of people who have rhuematoid? M Martin

You are the first person I've met who had neuropathy of the tongue. I alway described the feeling in my tongue as being spasicisity. But you might be right. I know about the socks, why do we feel every thread in them, can't anyone make a comfortable sock.
Welcome to BP