[jadenlanden]

hey im currently lookibg for someone that can help me on dealing with my 3 1/2 yr old lil girl. she was diagnosed with chiari malformation and paroxysmal non-kinsigenic dystonia and has pain naggin at her all the time i wanna be able to help cause mommies fix all booboos but mommy cant fix this what do i do

[Alffe]

Hi Jaden and welcome to NeuroTalk. Here is the link to our Chiari Malformation forum...http://neurotalk.psychcentral.com/forum71.html

and here is the link to our Childrens Health forum...http://neurotalk.psychcentral.com/forum9.html

I'm so sorry your little girl is suffering so.

[MelodyL]

Originally Posted by jadenlanden

hey im currently lookibg for someone that can help me on dealing with my 3 1/2 yr old lil girl. she was diagnosed with chiari malformation and paroxysmal non-kinsigenic dystonia and has pain naggin at her all the time i wanna be able to help cause mommies fix all booboos but mommy cant fix this what do i do

Hi, lil girls should not have to deal with this. I am so sorry that she is having to. She is in my prayers tonight. And so are you.

Just wanted to stop by, say Hi, and welcome.

Take care,

Melody

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number of fellow members here to assist as possible. My thoughts and prayers are with you.

Please give your little darling a great big for me.

Again welcome, looking forward to seeing you around.

Darlene

[lisamariedo]

Originally Posted by jadenlanden

hey im currently lookibg for someone that can help me on dealing with my 3 1/2 yr old lil girl. she was diagnosed with chiari malformation and paroxysmal non-kinsigenic dystonia and has pain naggin at her all the time i wanna be able to help cause mommies fix all booboos but mommy cant fix this what do i do

So sorry for your worries. My little girl, 8, just had chiari decompression surgery with CI laminectomy and duraplasty. She has been dealing with chronic neck pain her whole life and it recently got worse within the last 2 years. I'm not positive I made the right decision in having the surgery done, I felt it was the right thing to do because of the chance that it will relieve her pain and take away some of the risks involved in having a chiari malformation. Hers was a 13mm herniation. Her doc had to also cauterize the cerebellar tonsils in order to give everything enough room to restore CSF flow to normal. Now it's the wait and see approach. Will it work or won't it. Either way, I feel God lead me to my decision to have her surgery done...My prayers are with you and your little girl...remember, your instincts are key here. You're her mommy, and no matter how good the docs are, mommy usually knows best Good luck.