I am a 26 year old mother of two girls. I have daily headaches. I have been having these daily headaches, including migraines, most of my life. I also have a very rare condition. I have a porencephalic cyst (fluid filled cyst) in place of my right frontal lobe.
I have visual disturbances, extreme photosensitivity, short-term memory loss, and occasional anger outbursts. I am looking for anyone who can relate to daily debilitating headaches. Also, anyone with information on my cyst would be appreciated.
I bypassed the mental delays and have only had one seizure in my life (right after birth). The information I have found does not mention much for those fortunate enough to live past 20. I am the first patient with this condition that my neurologist has ever seen.