New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 02-12-2007, 12:49 PM #1
hope26 hope26 is offline
New Member
 
Join Date: Feb 2007
Posts: 3
15 yr Member
hope26 hope26 is offline
New Member
 
Join Date: Feb 2007
Posts: 3
15 yr Member
Default New Member with HSP and RLS

Hi,
I wanted to say that I am happy to find a neurological support group. I have a rare spinal cord disorder called Hereditary Spastic Parapalegia, or HSP as it is listed with the research community. It affects my legs, being very spastic and weak. I am wheelchair bound and also incontinent. I also have RLS and am very frustrated because I have just tried Requip and it made me sick. Worked wonderfully but can't go with sleeping and then being sick. I use to take Mirapex and that worked quite well. Changed my insurance as I am no longer working and on Social Security Disablity, thus on Medicare. My new program does not supply Mirapex so my Neurologist subscribed Pergolide, which does not work as well as the Mirapex. It is about to drive me nuts . If anyone can advise what has helped them, I would certainly appreciate that.
Thanks,
Lois
hope26 is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New Member annieaz Peripheral Neuropathy 11 06-02-2013 05:43 PM
Hello I am a new member LMJunior Reflex Sympathetic Dystrophy (RSD and CRPS) 18 02-03-2007 02:57 AM
New member hello! joneb Peripheral Neuropathy 13 01-28-2007 06:10 PM
A New Member Joan Marie Peripheral Neuropathy 8 01-20-2007 02:31 AM
New member thehappyscientist Thoracic Outlet Syndrome 4 12-06-2006 01:35 AM


All times are GMT -5. The time now is 05:02 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.