[Cathy]

I was attempting to look up some detailed information on RSD and just took a chance clicking on your link and I think it was the right thing to do...so thanks for being here.

I was diagnosed with RSD after a broken hand from a car wreck in June, 2004. I had never heard of it before and it was a very scary time as this was a w/c injury and decisions are very slow in coming for treatment. I had terrific doctors who kept me very confident that all would be well.

I read a little of the medication threads about Lyrica. I also was on Neurontin. Had no side effects while taking it as it was slowly built up in my system, but the side effects coming off it were not very good. I did that myself as I thought I was cured!! When that didn't seem to be working too well, the physical therapy doctor asked me to try Lyrica. He wanted to work my dosage up to at least 100mg 3x's a day; however, I did gain weight quickly - much to my total dismay. I take 75mg in the morning, and 50mg at midday and 50 mg at night. My primary physician asked me if I thought it worked as he will refill prescriptions that are already in force, but won't give it as a new script as he feels it is still too new. I do feel that it must be doing something, but what??? When I try to cut out the midday dose, I do feel more pain so? It's all a trial as everyone is different.

Now, my initial reason for looking for info is: I am to have periodontal work done early March and I'm scared. I had a tooth pulled and for at least 4 days after I had tremendous pain in my hand, forearm upper arm and shoulder. My husband is a bit leery about my going forward with the dental work as we don't know how I will react and RSD is still so unknown - neither of the dentists seem to have heard of it. So if anyone has any experience in this arena, I would certainly appreciate it. Also, info on flare ups would be so helpful. Dealing with pain everyday even when it is not at its worst is so tiring and energy zapping. Is there a way to prevent flareups? Will this ever go away? I know I am doing so much better than so many others, but this is so nice to be able to say these things 'out loud'. Anyone I've tried to discuss it with just worries about me and I don't want that.

I guess that's the long and short of it for now. Thank You.

[Chemar]

Hi cathy and welcome to NeuroTalk

so sorry to hear of what you have been going through

do be sure to also post an intro on our RSD forum as the members there are so supportive and helpful
here is that board
http://neurotalk.psychcentral.com/forumdisplay.php?f=21

[Curious]

to NeuroTalk Cathy. i see chemar has pointed you in the right direction.

i'm sorry that you have rsd, but glad that you found us for support and information.

[Chemar]

Cathy
i also wanted to let you know that we now have a dental forum here, as you had mentioned the tooth extraction had intensified your RSD pain

So often dental issues can affect not just our general health, but our neurological issues too!
http://neurotalk.psychcentral.com/forumdisplay.php?f=89

[~KELLWANTSANSWERS~]

Hi Cathy
First off i wanna say welcome to NT.
Secondly i want to tell you that you have indeed come to the right place!
I was so lost this past summer w/out the help of these people!
I completely understand what you meant when you said.It's so good to say al lthis out loud ..These people wont judge you or make you feel like your complaining.
I feel like you do.I just think people assume i am just complaining about petty stuff.
But to us it's a nightmare we can't seem to wake up from!!
I hope you come back soon and let us know how you are doing.