I was diagnosed with RSD in April. Two years ago I had surgery on my neck and now RSD has developed. I have it in my neck, back, both arms and now my feet and ankles. I have a good doctor but am now running into insurance issues. I have had to quit working and my dr.'s office does not want to contract with a new company right now. There are only two pain specialist in San Antonio listed on this insurance; one does not treat RSD, the other dr.'s office will not return my calls. I know my doctor would be very concerned but I can not get past the office staff. He would like to put in a neuro stimultor. I feel this is the best course of action as my symptoms are worsening. Where do I get more infomation, support and advocates? I truly feel lost. This is taking a huge toll on my family and my life is diminished by over fifty percent. Does anyone have any advice?

Hi, just want to welcome you to the community. You'll find lots of support here, I promise!

Here is a forum where you might find some helpful information:
http://neurotalk.psychcentral.com/forum21.html

Browse through the other forums, too, and you're sure to find some friendly folks.

I saw your post on the SCS forum and responded to it before I saw that you had made one here
Thank you for introducing yourself......you will be amazed at the amount of support there is here at NT

Blessings2you has given you the RSD link and you'll find SO many folks there who can understand what you are facing....

It looks like you are finding your way around ok, so please feel at home and post wherever you feel inclined.
Please hang on to hope......I know how overwhelmed you are feeling right now. Answers will begin to unfold for you. You are doing the right thing by reaching out.
I pray that your Dr will put you on a path that will give you the best possible pain relief there is. I'm sorry you are having frustration with the insurance and office staff.......Once you get past that barrier, things should really get on the move for you.

Here is the direct link to the SCS/Pain Pump forum, since you are inquiring about that option......it's a very active forum as well and much can be learned from hearing other's testimonies
http://neurotalk.psychcentral.com/fo...ysprune=&f=118

You have found a whole new batch of caring people, so hopefully you can begin to gain some peace of mind by knowing that there ARE many people who do care!
Rae

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number of fellow members here to assist you. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene