NeuroTalk Support Groups - New Member with RSD

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- New Member Introductions (https://www.neurotalk.org/new-member-introductions/)

- - New Member with RSD (https://www.neurotalk.org/new-member-introductions/13223-rsd.html)

I am so sorry for both of you. I know its the hardest thing it seems why WHY ME !!!! You are right about immmmobilizing it the area. I broke 5 bones that was June 14th will be 4 yrs and guess what I still have my cast on. I am in a wheelchair and have no bone left in the leg because the bone was unable to keep growing because I couldnt walk and still cant. I was told if they had got me in water I wouldnt be in a cast so maybe talk to your dr about getting her into the water a pool and have you also talked about oxygen combers?I was and did talk to my pain dr he said yes what ever works he didnt know iif it would help but he said its not a bad choice to try. I couldnt at this point insurance but Im working on it. I dont have the skin problem I have stiffness everywhere Im at full bodie RSD and Im 39 now and I have a tee that is losing out because he is afaird of leaving me alone I just went through a divocre whiich was very hard the stress was killing me.Its over now. Have you talked to the school about help getting her to class most colleges I went back in my mid 20s and I had a different ilness and they helped but in away talk to to learning center or its called something like that ask someone in charge of classes but they will help her get to class carry her books and take notes siting by her or if she cant be there that day and anything ealse she needs its like if she was blind schools will they have to help peple with diabilty and this is that, Im starting to have problems seeing I only see color and I get bad headacks and half my face is numb.I know im not a teen not close at all but my son iss and he doesnt have RSD but he has losed his life to by his choice but I dont want him to . I think its gret she is trying to go to school she will make it ask about the oxygen because it helps but good oxygen in you and help heal saors and skin issues and dones and other things See if you could really talk to her dr about that it might help her alot I was told I had RSD with in a few months but I was still very unluckly its moved very fast and my thinking writing mermorymy life has changed so fast so much i dont know what I should do I told my son this is probally the last summer that I will be able to do something special together because I am in bed almoat 22 hours a day Im tieder but cant sleep because of pain and my pain specialist cant do anything. So try these thing and let me know. Good luck..............Both of you......................Gentle Hugs Karen

Hi Karen :) Welcome to the boards. I look forward to getting to know you.

I developed rsd when my sons were ages 10 & 7. They are now 23 & 20, and have grown up real well, even if I do say so myself. <big cheesy grin while patting myself on the back> Having rsd certainly DOES change how one parents, but it doesn't necessarily have to be in a bad way.

My relationship with my sons changed dramatically. We had always been a very loving family, but sometimes too busy for each other. With me not working anymore, and our finances curtailed quite a bit, we became much more cerebral and emotional. In the long run, I think it went much better that way. I know that having expressed ourselves to each other the way we did, we know each other much better than many families. We don't have unrealistic expectations of each other, either. Instead of being hurt and disappointed when one of us doesn't do things the way we would, we just say "oh well, that's just Chris (or whoever)".

I don't know too many other mothers who can say their sons know how to crochet and macrame', lol. But both my sons were quite willing to learn whatever craft I was into for the moment... sitting still made me crazy, so I at least had to keep my hands busy! (Nowadays, the rsd is creeping into my hands, which is a different story altogether).

So don't stress too much over it, Karen. Your parenting style will have to change, but the love and respect you feel for each other doesn't need to.

As an old acquaintance of mine would say:

Onwards & Upwards! :p

RSD,er for 15 yr's

Quote:

Originally Posted by rsd kitti (Post 69618)

Hi. I just found out about this group,it seems like something I really need. I have been reading some of the messages of nice people who are dealing with the same health issues I am. Im looking forwards to getting to talk to people I really need that. Im raises a teenager with not alot of help and he is having to deal with my health also. Its very hard for him and me but my son always comes first before me and my health issues. I just would love to talk to people without hurting my son anymore than he feels.

Thanks for this place to come to talk and to listen to others. I uesed to help others. I am when I was working an Home Health provider and now Im the one that needs all the help I can get.

Please leave me an message if anyone feels like they would like to.

My name is Karen I hope I did this right (Im learning to use a PC never had to before..LOL......plus my age LOL......):o

hello hun, how are you doing this eve. ? my name is jay & i have had this monster for 15 year's now. i'm new at this not sure if i'm doing it right so i'll stop here and wait for a reply from you, hope to hear back soon take care hug's, jay in virginia..

Hi basstracker. welcome to NT,
did you find your way to the RSD forum?
here-
http://neurotalk.psychcentral.com/forumdisplay.php?f=21

Hi Basstracker!

:welcome_sign: to NT!. I am sorry you have to battle this and for so long.

Check out the RSD board, there is some great information and awesome people who can help and just be there for you.

:hug:

Hi Bass, nice to meet you :D I look forward to getting to know you. It's nice to see someone who has had this awful disease longer than I have- 14 years for me! (that may be a bad way to put it, hope you know what I mean)

See ya in the RSD forum!

hello Judysh

i have also copied your post over to our RSD Forum as the members there are very helpful and knowledgable
here is the link to your post there
http://neurotalk.psychcentral.com/sh...ad.php?t=21949

so sorry for your daughter suffering this way. You will both find a lot of support and information here

again, welcome to NeuroTalk :)

Hi (((Karen))) and (((Basstracker))). I'm glad you found your ways here and looks like you've been in very good company! Welcome to Neurotalk.

:grouphug: