Hi. I just found out about this group,it seems like something I really need. I have been reading some of the messages of nice people who are dealing with the same health issues I am. Im looking forwards to getting to talk to people I really need that. Im raises a teenager with not alot of help and he is having to deal with my health also. Its very hard for him and me but my son always comes first before me and my health issues. I just would love to talk to people without hurting my son anymore than he feels.

Thanks for this place to come to talk and to listen to others. I uesed to help others. I am when I was working an Home Health provider and now Im the one that needs all the help I can get.

Please leave me an message if anyone feels like they would like to.

My name is Karen I hope I did this right (Im learning to use a PC never had to before..LOL......plus my age LOL......)

Hi Karen,

Yes, this site is very helpful. I have RSD and raising teenagers at the same time. But I feel that they have learned to be independant. I have had it for 3 years and I think just recently they have adjusted. Think about it one day everything is going along normally and Mom gets into an accicdent heals from those inquires and then finds out that she has RSD which is worse than the accident inquires and so much harder to get under control. Its very tough, But on the bright side we are all here to help each other. If you have any questions please don't hesitate to ask.. Good Luck

Ann

Thank you, I broke my foot june 14 2003 and am in a chair and same cast still. I have full body RSD now it spread with in abut 3 months from the fall I had. I feel 2 steps at my brothers because the deck wasnt done and I didnt know. I was on crutches for a year than went into the chair that was setting in my dinningroom but I wasnt going to give up and Im still not but the pain is so bad they have tried everything a stimaltor didnt work scare tissue an jump but I had a spinal leak for 8 months before they removed both and blocks and IVs. Even though it was caught fast my body moved it fast. I am in stage 3 at 39. One day at a time and I am starting my life over after a long devorce that was just done with the property issues over last week finally so that stress didnt help. My son is so happy that its done to. He was adopted by my ex 2 months before the injury from my first exhusband right out of high school.

Thank you again I hope we can talk again. If I can help you just ask please.

Gentle Hugs take Care Karen

Hi Karen and welcom to the forum.

Karen,

Welcome to NeuroTalk. It is great to see you Have you come abroad with us. You sure sound like a loving mother. It is wonderful to have such loving kids (we have 2) who care for us.

Hope you are feeling better at this time.

Darlene

Hi Karen and welcome to Neurotalk

dont forget to also introduce yourself to the members on our RSD board
http://neurotalk.psychcentral.com/forumdisplay.php?f=21

Hello ladies! My name is Lisa, I also have RSD, and am the mom of a teenager! We have lots in common

Did you know a teenagers brain is broken? LOL! I also own a website for single parents who have a hard time collecting child support, and I am currently focusing on adding articles about teenagers to it, and since my son is exhibiting symptoms of having a "broken brain" (parents of teens know these symptoms!) I figured I'd add those types of articles. Makes for some interesting reading and makes me more tolerant of my son.

Come on over to the RSD forum and meet the wonderful people over there. They're very knowledgeable of the disease, and very kind. You'll make some great friends there!

Hello,
I just wanted to welcome you to the group. I joined the group in January and its a great group to be long to. I have met some real nice people on the boards. I hope you enjoy the group. Take Care

Laraine

Thank you to everyone welcoming me and being here. I have one question where it ask you about Buddy list if you want them to be a buddy do you put a check next to their name? I'm a little confused about that.I wont everyone as a buddy. Also is it better to have your emails invisiable I'm a little confused on that to. I get confused easly latetly. I no thats part of RSD my pain managment Dr said. Maybe its all the meds to. I'm on so much and so many.I wrote 2 different parts on the welcome spot. I wasnt planning on doing that when I found this grooup it was one of the real bad days and on top of that I am now sick and lost my voice, my son was (is) sick and of course I get everything including a hang nail if someone has it.

Thank you to everyone again it makes me feel like I have somewhere to go instead of trying to deal with it by myself or trying not to have my son listening to all of it all the time even though he says he hears me crying at night even with his door shut. I'm glad school is in and its not summer. Summer is so much harder to deal with this and me in a wheelchair I'm just starting to,my son is dealing better than I am and he has his own medical problems we are dealing with his heart problems at almost 15 he was rushed to the hospital in 8th grade after the school called 911 and he has touretts and OCD and anxity disorder and he and I are dealing with a bad car accident that my exhusband had when he was drunk without me knowing he was almost killing my son. So we (my son) is having dreams now. So live has been more stressful but I'm trying everything I can to make it not. Has anyone with RSD try the chat room? Im not sure how to use that and I was wondering if there is a place to go to talk to someone about RSD or a group of people at one time. Thank you again for all the welcomes and different people out there.

I live in San Luis Obspio County in Calif. and was wondering if anyone knows a pain managment Dr here, a different one than I'm seeing and if anyone knows one in Oregon in Roseburg or Eugene,or 1 hour or so away from Roseburg Oregon?

Gentle Hugs Karen (rsd kitti.)

Hi. I have just been reading about parents who have RSD and are raising teenagers. Well, I am a mom with a teenage daughter who has RSD, the result of a sprained ankle when she was 13 and in a school cross-country run. She is now 19, and has missed all her teenagehood - dating, social life, volunteer activities, etc etc. Of the four years of high school (grades 9 through 12), I would say she missed about a year of school. Luckily, she is very bright, and with the reluctant cooperation of her teachers, I took work and assignments back and forth every day, from home to school, so she stayed on the Honour Roll and won scholarships to university. University is proving to be a major challenge, and we have found that the stress of dealing with constant pain and a full course load is too much, so she ended up dropping some classes. This fall she will only take 2 instead of the normal 5 courses, and so it will take her a lot longer to get her degree.
Aside from the horrible pain, the inability to walk unaided, the distress of being in so much pain all the time, the loss of a social life, she is now having to cope with a new problem, that is thin skin that is literally springing leaks, and the wounds are not healing. The tiniest thing, and blood is running down her foot. I am using Jelonet, the impregnated gauze dressings used for burn victims and skin grafts. These are painful to put on, as anything touching her skin is painful. She is also on a variety of powerful pain killers which often leave her groggy, and that makes school work impossible to do.
It took 18 months for a diagnosis, during which time she was sent from one doctor to another, all of whom did the wrong thing. Her leg was in a cast for 6 weeks, and we know that immobilizing RSD is the wrong thing to do. She was told it was all in her head, and sent to a psychologist who gave her a "go to your happy place" tape to listen to.
I am wondering if anyone has any ideas about new effective drugs and also about photon therapy?
Thanks.
Judysh