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new dx after 8 years of symptoms

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Old 10-09-2010, 11:03 PM   #1
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Join Date: Oct 2010
Location: Northern California
Posts: 7
Arrow new dx after 8 years of symptoms

I have had TOS symptoms for the last 8 years. I have had bilateral CTS release with partial improvement, r ulnar release last yr with no improvement. My symptoms started while working at the computer and at night, then progressed to most of the time. I was discharged from my occ med MD and then within 2 months was referred to a vascular surgeon (I have seen three so far at Kaiser). They all give me a 50% chance of improvement with rib resection; I also saw one MD outside and he felt I had a better chance of improvement. In general things are slowly progressing. I have pain in the ulnar distribution in both arms at night, cramping pain during day if I use them and major pain in the shoulder girdle along scapula, under arm ind into chest, numbness at night and strange parasthesias during the day. I also get goosebumps and sharp shooting pains in my right arm if I use it too much. My right hand swells in certain positions but no white hand symptom. Headaches almost daily when using arms- right side posterior. I am only taking Nortriptyline at night to sleep through the pain. I am not going to try narcotics since I know they only help at first...I have done PT long therapy x 2 since this all started. I was a swimmer, worked out all of the time and now only do yoga which I have to modify. I am a nurse who has worked on a computer for the past 12 yrs. I am probably going to have surgery. I have broad shoulders and put on muscle very easily- in fact one of the MDs commented on the fact that this could play a role.
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Old 10-10-2010, 11:11 AM   #2
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Welcome to NT 2Laurie2.
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Old 10-10-2010, 12:57 PM   #3
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Posts: 11,293

Hi Laurie and welcome to Neuro Talk. Here is the link to our TOS forum...http://neurotalk.psychcentral.com/forum24.html

It's a great place to exchange information, get support and make friends.
I'm glad you've joined us...so sorry for the reason.

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Old 10-10-2010, 02:29 PM   #4
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Join Date: May 2007
Location: Florida
Posts: 4,240
My Mood: new dx after 8 years of symptoms

hi laurie and welcome to NT,

i'm glad you found us but i'm sorry you're dealing with daily pain.
i hope in the future something will help you overcome some of this.
trying to be New Skinny Butt
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
"DESIDERATA" by Max Ehrmann
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"Thanks for this!" says:
2laurie2 (10-13-2010)

headaches, neck pain, scapular pain, surgery, tos

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