I have had TOS symptoms for the last 8 years. I have had bilateral CTS release with partial improvement, r ulnar release last yr with no improvement. My symptoms started while working at the computer and at night, then progressed to most of the time. I was discharged from my occ med MD and then within 2 months was referred to a vascular surgeon (I have seen three so far at Kaiser). They all give me a 50% chance of improvement with rib resection; I also saw one MD outside and he felt I had a better chance of improvement. In general things are slowly progressing. I have pain in the ulnar distribution in both arms at night, cramping pain during day if I use them and major pain in the shoulder girdle along scapula, under arm ind into chest, numbness at night and strange parasthesias during the day. I also get goosebumps and sharp shooting pains in my right arm if I use it too much. My right hand swells in certain positions but no white hand symptom. Headaches almost daily when using arms- right side posterior. I am only taking Nortriptyline at night to sleep through the pain. I am not going to try narcotics since I know they only help at first...I have done PT long therapy x 2 since this all started. I was a swimmer, worked out all of the time and now only do yoga which I have to modify. I am a nurse who has worked on a computer for the past 12 yrs. I am probably going to have surgery. I have broad shoulders and put on muscle very easily- in fact one of the MDs commented on the fact that this could play a role.

Welcome to NT 2Laurie2.

Hi Laurie and welcome to Neuro Talk. Here is the link to our TOS forum...http://neurotalk.psychcentral.com/forum24.html

It's a great place to exchange information, get support and make friends.
I'm glad you've joined us...so sorry for the reason.

hi laurie and welcome to NT,

i'm glad you found us but i'm sorry you're dealing with daily pain.
i hope in the future something will help you overcome some of this.