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New Member Introductions Welcome to our community! Come in and introduce yourself to other members!! |
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#1 | ||
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New Member
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Hello all My Name is Mark and I have been dx'd with crps and radicular neuropathy. This all started with a caged fusion surgery from L3-L5 that went wayyyyy south from the first hour into the 6 hour olympic event that should have only lasted maybe 2 hours; beginning to end. This first surgery left my family and I reeling, swelling that was not caught bythe surgeon or ICU staff post surgical yet was caught by my darling partner who is an RN masters level stroke nurse. We(she) was told this was normal with this type of surgery and not to worry! This surgery left me in the hospital for 10 days(told prior to surgery 3 max!), during memorial weekend into june may-june 06' , first post op visit with surgeon he debrided foot long site in office because stitches at top and bottom of wound were infected because tails of the stitches curled under scar tissue, and top drain was slightly infected. 2nd post op visit wife asked surgeon about P/T he told us to wolk on a treadmill which at the time was impossible due to the fact I had to ambulate with a walker which ended up in disgust and myself throwing the walker at him and telling him to go to hell, and office staff hounding us for co-pays and other insurance covered costs. 1 year later problems arose stability issues and neuropathic changes that my physician ordered a ct and mri finding a broken fixator screw, loose screws, and failing hardware to prompt a consult with a new surgeon 2 &1/2 hours away from our home to eventually schedule a complete repair of the previous surgery 14 months earlier good news better, badder hardware, 3 day hospital stay and new diagnosis of cuada-equina syndrome all verified by 2 seperate neurologists called in by new surgeon 1 present entire repair surgery to monitor nerve functions during surgery and the next brought into the game by us. So here I am 5 yrs. later failed meds, P/T, the whole gammit you all know may know the story!! and now I'm currently seeking treatment with a pain specialist considering pain med pump or SCS would love to hear from others who have or are suffering with the same issues and / or who have had these treatments to lend me some friendly suggestions / advice on which way to go next ????? I did last year at this time have a trial procedure for a SCS Trial that failed due to hardware intrusion, and the trial leads landed in an area(s) where it was not supposed too causing some more complications pain management wise.. Right now Im trying to remain optomistic yet remain highly skeptical of a repeat performance.... Please Share with me asap ,see the doc on Nov 09 2010.. Thank you Mark and family ![]() |
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#2 | |||
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Grand Magnate
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Hi Mark,
Just wanted to welcome you to NT although I am very sorry for the reason that brings you here.... You'll find much support here....People are very caring and understand the frustrations of what you are facing. The RSD/CRPS forum is full of wonderful folks......like one big family Also, there is a forum here specific to SCS/Pain Pump discussion.... here is the link to get you there (it's in the main menu as a sub-forum in the "Medications & Treatments" forum..... http://neurotalk.psychcentral.com/fo...ysprune=&f=118 I've had my SCS for 8 months........doing great Hope to see you over there..... Caring Rae ![]() |
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#3 | |||
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Legendary
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Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring fellow members here to assist you. Our shouders are here for support in many ways. My thoughts and prayers are with you. Again welcome, looking forward to seeing you around. Darlene ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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