[Quilter]

Quick Hello to all. I have struggled with neurological problems for almost 5 years. Today at OHSU I met a wonderful doctor. I was told I have signs of small fiber neuropathy and large fiber neuropathy. I am scheduled for two types of EEg'? a million labs done today. I am scared b/c I looked on the web and it said that Large fiber neuropathy can lead to sudden death. I have a 9 year old. I have struggled for years, not knowing what is wrong, and to suddenly see I now am in a catagory that is 50% death rate within 3 years of diagnosis. I'm quite tearful.

I'm hoping someone will tell me that internet stuff was a bunch of bologna.

Worried in Oregon