Hi Everyone.
I have full body RSD at 39 yr old .June 14th this yr will be 4 yrs. i broke my foot falling off or stepping off my brothers deck the last 2 stes were not there and he didnt tell anyone and he is an Artic/contractor so dont ask me why he didnt say anything to anyone and they have big partys there all the time. I was the lucky one. I was already ill with something ealse fighting to stay alive from that which I wasnt suppost to but I have. I have almost died 3 times from that. Im raising a teenager by myself. I have been since he was 5 months then got married again for 6 yrs just last week got the property issues done and I had been devocred since the last 8 months. I broke 5 bones in my foot and other injugeries to that foot along with it. I knew something was wrong because I worked for hospic since I was 17 before graducating. I love helping people and now I have to learn how to be the person they are helping. But I havent had any help for 7-8 months. I was/ am dating a great man but he moved out of my state we were going to move together but I couldnt move without my ex saying ok he did now but my boyfriend opened his own business so its alot for him right now. So Im here trying to keep going on.

A yr after I was still on crutches and the dr wanted me in a wheelchair but I knew I might not get out because the RSD spead so fast the dr said he never seen that so finally I ended in the chair. I havent walked in almost 4 yrs. The dr has done everything he can do for me injections stimaltor pump I have a bad problem with scare tissue and when they put the pump in I got a spinal leck so I was real sick they waited for 8 months before removing it and fixing the hole. So I have the same walking cast and living in a chair raising a teen and cant sleep and meds arent working but Im trying to go on. I have more bad days than good ones. I cant remember what it is to not have pain and not fell your feet except pain and numb from beig so cold and the rest of me is just like that. My son wouldnt even hug me or kiss me goodnight for the first couple of yrs and I didnt know why he said he was afraid to hurt me I said you cant so Im getting kisses again on the forehead but no hugs. My boyfriend gave me a different kind of hugs so I wish someone would just hug me I miss it so much and my mom isnt around unless its to take my son somewhere because she cant watch me in pain anymore so I really dont have anyone so I started learning how to use a computure from my son and I found some groups.

My friend is the pc.I have meet alot of people but as soon as they are told because they usually want to meet me things change thats how I meet my boyfriend. He doesnt care at all never has except to watch me hurt like I do.

So Im glad I found you and I hope to help and get some help here. There is alot more but I cant type aymotr so I hope a little by little you will hear more from me and whats happening. Best wishes to everyone and I hope I filled out the questions out right so I can talk too. Best to you all. Karen.....(rsd kitti)
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