Originally Posted by Hawkeye50 (Post 915354)

I like most of you have Porphyria CEP/HEP ( Lucky me right?) I have a question for everyone. Does anyone elses physician seem to be scared to treat them? Anytime I have a minor flare up and need a need just a few prescriptions for pain or the swelling she always doesnt want to see me and tells me to go to the ER and she will send my files. When I first met this doctor I even explained she cant be timid and what not but she only likes to see me if its just for my blood work and urine test.