[ray4daisy20]

SOO happy to be here, didnt know this is what i needed till i got here. I'm here looking for information, opionins, or maybe just for someone to listen to me. My mother was diagnosed with early onset parkinsons at 42 ,13 years ago, she seemed fine till about 5 or 6 years ago she became a COMPLETELY different person. She started gambling, left my father while he was in the hospital w/o him knowing, w no electric, no furniture but a single chair, took his dog never to speak to him again. She had always been a good ,kind hearted ,intellegint person who would have never done this before , she was loved by all and now has become , different. What I am trying to figure out is were these changes of becoming this different person from Parkinson's disease or the medication? Well if i am understanding correctly after 5 years of constant ( maybe 100) trips to the emergency room, moving from family members home to another, leaving them all worked up and not speaking to her again. she has spent countless hours screaming and cursing god because of this horrible pain,most of the day and all night Cussing and being rude to everyone and even doing these things in front of my children She went to many many doctor visits,him saying she looked great (because sometimes she did) telling him somthing just isnt right at one point She goes to a different hospital recently and they tell her they do not believe she has parkinson's and the medication is causing her problems. People for years - ambulance drivers that see her all the time, and other doctors at other hospital family physicans and others have been saying its all in her head. I can sometimes see the twisting in her feet and hands wich to me looks painfull( not always though) She screams quite often and quite loud of the pain in her feet and legs and begging to die. They have never given her a pain medication even though she has never had an addiction problem. She was here for the last three days and I barely got any sleep. Parts of the time she was perfectly normal , cleaning without a limp or any sign of anything,but most of the time she seemed unable to move at all with me running around like my head was chopped off moving her around, adjusting her pillows ,clothes,heating towels, sitting her up then down and was up every hour of the night spending 45 min getting her in and out of the barhroom. I was doing everything i could when she just started yelling at me my friends then started her usual "call 911" and 'im going to kill myself" ,"why me" etc... Most of the time I handle these episodes well but when they are in front of my children or too out of control, i begin to loose it myself. I could go on and on, like she cant seem to get another doctor right now because noone wants to deal with her or the situation i guess. I'm sorry this is long but it barely scratches the surface of our story. Any information ,opionons or any anything would be great because we really are clueless at this point and cant seem to find anyone to help