[brainedout]

Hi All

I'm Shaun and I'm a 41-year-old Asian male. I've been having neurological symptoms over the past year and am trying to find out if others have had similar symptoms as I have. Have been to to a couple of neurologists and I feel they haven't been very helpful.

Merry Christmas and Happy New Year!

[mrsD]

Hello, Shaun, and Welcome to NeuroTalk.

I read your other post this morning, and have some questions for you.

Have you been tested for B12 levels? These can fail in people who use certain drugs commonly, acid lowering drugs for the stomach and metformin for type II diabetes.
People with gluten intolerance may also have low B12 or people with failing intrinsic factor (autoimmune disease or genetic inheritance). If Clioquinol is still available where you are, this drug severely impacts B12. (this drug also called Vioform was common in Asia, for treating traveler's diarrhea).

So getting that tested may reveal a direction for you to take.
Here is my thread on B12, here at PN. Do not accept "normal" results, ask the doctor for the numbers. Get the concentration also...since some countries use different reporting concentrations.
US uses pg/ml and other countries use pmols/L. I can convert that for you if you get those results.
http://neurotalk.psychcentral.com/thread85103.html

I invite you to read and post at our PN (Peripheral Neuropathy forum). We have a subforum with lots of information and conversations at the main forum location.
Some of our members post about painful facial sensations.
The fact that you have bodily symptoms, concerns me and points to a more global cause than trigeminal neuralgia. But that is just my opinion.

[brainedout]

Thanks for your welcome, mrsD. No, I haven't been tested for B12 deficiency - it's about the only one I haven't been tested for! It's funny you mentioned acid lowering drugs as I developed GERD in January and was put on a proton pump inhibitor (PPP) for about four months. I'm off the PPP now but I still take Gaviscon as and when I have acid reflux symptoms. I think I first noticed my twitches and tingling sensations about two or three weeks after I had my GERD symptoms. But I have been taking a B1-B6-B12 combo supplement, somewhat irregularly, since then. Perhaps I haven't been taking enough? As of June, my blood sugar and thyroid levels are normal. I'm going for another complete blood profile in January. I shall request for a B12 test then.

[Abbie]

Hello Shaun and WELCOME to Neurotalk!!

I see that MrsD has given you some great information!!

Here is the link to our Peripheral Neuropathy Forum: http://neurotalk.psychcentral.com/forum20.html


Please feel free to roam around and join in anywhere!
I look forward to seeing you around the board!

Abbie

[brainedout]

Thanks, Abasaki!

[Darlene]

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

You will fine here some wonderful caring friends helping out as they can. My thoughts and prayers are with you.

Again welcome, looking forward to seeing you around.

Darlene

[brainedout]

Originally Posted by mrsD

I invite you to read and post at our PN (Peripheral Neuropathy forum). We have a subforum with lots of information and conversations at the main forum location.
Some of our members post about painful facial sensations.

Hi mrsD

Perhaps I missed it, but I couldn't find the thread(s) discussing painful face sensations in peripheral neuropathy. Help, please.

[NurseNancy]

hi shaun,

welcome to NT.
i hope you find the forums helpful.
i've been dx'd with MS since '03 and have found it helpful to get copies of my test results. i keep a file on myself. sometimes when and if you see other drs...they like to see it. plus you learn a lot about yourself.

[glenntaj]

--there are a fairly large number of threads that discuss facial symptoms of neuropathy, but they're not always clearly labelled as such from the beginning of the thread; it's a subject that tends to come up in varied circumstances, usually along with some commentary on how some physician claimed that facial symptoms couldn't possibly be a neuropathy symptom.

I am one who had significant facial involvement in his neuropathy, and there are others. Often, if you do a search for "face neuropathy" or "body-wide neuropathy" you'll find these discussions (or just wander back through my posts--warning: there are a significant number of those).

[pabb]

Originally Posted by glenntaj

--there are a fairly large number of threads that discuss facial symptoms of neuropathy, but they're not always clearly labelled as such from the beginning of the thread; it's a subject that tends to come up in varied circumstances, usually along with some commentary on how some physician claimed that facial symptoms couldn't possibly be a neuropathy symptom.

I am one who had significant facial involvement in his neuropathy, and there are others. Often, if you do a search for "face neuropathy" or "body-wide neuropathy" you'll find these discussions (or just wander back through my posts--warning: there are a significant number of those).

lol, and when is the doctorate going to be awarded, i am close enough i will come for the ceremony.....lol