NeuroTalk Support Groups - Collapsing without warning

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- - Collapsing without warning (https://www.neurotalk.org/new-member-introductions/142307-collapsing-warning.html)

Welcome to Neuro Talk. I would not have liked a doctor telling me that either. Surgery???? without even taking an MRI? How would he know what is wrong? Please get another opinion, and that ever important MRI. Pain and colapse of that magnatude is never a good thing. We will all be here for you at Neuro Talk. Keep us informed on how it goes. You really do need a much more intense investigation. ginnie

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smrohde975,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

Sad to hear about what you are going through. Check into the following forum, there should be someone there to assist.

Spinal Disorders & Back Pain:
http://neurotalk.psychcentral.com/forum22.html

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

I am new and obviously am having terrible problems I was given an MRI without contrast and was told I am fine. However, my left arm and leg go "to sleep" more often than not and I use that word "gone to sleep" because its the only way family will even have any clue. It becomes numb and when the tingling starts whether in my legs or arms it is like needles poking me everywhere. When it is in my feet its like walking on needles. What I need to know, which I have found no answer for here, is this "what symptoms do you have more likely when it lesions are only in your spine or neck? Could someone help me. There are so many other "symptoms" i have but wanted to get this answered and when introduce myself I can go through all of that. Thanks you for any help anyone can give me. I did have a bout of optic neuritis but that was dismissed by the neuro I see (which is getting 1 more chance and then on to another one)

Hello and welcome to Neuro Talk. If any neurologist simply dismisses you with the symptoms you present, if it were me I would not go back. My first neuro, I actually waved bye bye. He didn't take me seriously at all. My second neuro, was fantastic, and I sure hope you go to the bother of finding a neuro that will take all you have to say very seriously. One thing may help with your next appoint. On a calander, keep a pain journal, of everything that happens pain wise during your day. also if you take someone with you to the appointment, the doctor will be much more attuned to you with another individual to back up what you say. Both these things help the doctor too.
Your symptoms could be anything, and I sure am no physician. If your MRI is clear, that is great! There are other neurological conditions that must be considered with a very good neurologist. One who cares. I will keep you in my thoughts and prayers. I hope your weekend is as pain free as possible. ginnie

Nice to meet you!!

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Laurie,

:Wave-Hello: It is great to have you come and be with us. You will fine a great number of dear friends to listen when you are in need of ears. Please, just let us know how we can help you out. You will find out we are supportive and relaxing place.

I will agree with ginnie you need to find a neuro who will listen. I too went through a great number of neuro before I finally found one that listened, and because he came along my medical life has turn out great.

Please keep us up to date on your situation. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Oh my gosh....I'm not alone...

I have searched the internet for months and months and Shovelhead Dave is the ONLY person I've seen with the same exact issue as me....anywhere! I so wish i could contact him to see what his diagnosis finally was. This has taken over my life and the Drs have no clue how to fix me.

I have been suffering with the EXACT same phenomenon for the past year and typically notice that it gets worse or better depending on diet and exercise. When I eat dairy or nuts, or when I remove or stop drinking coffee or do a sugar detox these things will all trigger the pain--inflammation caused by these foods or the abrupt removal of these foods will sometimes cause my back to seize up, usually when standing, but always when I twist slightly the wrong way. Thing is, I can pretty much bounce right back and be fine. Run, jump, stretch, whatever. When I am eating clean for months at a time--this doesn't happen. Remember your colon is back there too!

I believe I have also compromised my lower back by doing indoor cycling for so many years. The lack of back support on these kinds of bikes is notorious for causing lower back issues.

I want to also say that I do not incur ongoing back pain, enough to warrant taking drugs. My back seizes up randomly, and then I'm fine. No pain.

I hope this sheds extra light on your situation. I know I would not want surgery at all. And that's kind of what I fear if I go to a specialist for this.

Yes I have had that!

Quote:

Originally Posted by SHOVELHEAD DAVE (Post 731664)

I have already visited a doctor with the problem I have, but I'm not really satisfied/comfortable with what they said, so I'm curious to hear if anyone else has (a)..experienced it,..(b)...had treatment for it...and (c)...did the treatment stop it happening.?
Every several weeks or so, at no specific interval, I get a severe pain at the bottom of my back which I describe to friends/relations as being like someone sticking a knife in my back. When it happens, the pain is often so bad that I let out a yell, before collapsing to the ground a split-second after.
I can only describe this 'collapsing' as being like someone switching my legs off. I have no control over this whatsoever, but I must point out, that I DO NOT FALL DOWN 'BECAUSE' OF THE PAIN I AM IN.....The pain and the loss of control of my legs always come together, almost instantaniously.
This also always happens whilst I am standing, (never in a seated position) and I am never lifting a heavy weight, overstretching, or doing anything strenuous. Often, I can simply be standing having a conversation with someone when I suddenly get the pain, and hit the ground.?...I should also point out, that this is not some kind of 'fainting'. I am always completely conscious, and aware of everything around me, and can have sensible conversation with anyone present. After I fall to the ground, from past experience, I have learned that if I adjust myself quickly to lay flat on my back, the pain which I still feel with even the tiniest movement, dissapears very quickly, and moments later, I can be helped to my feet, and suffer no after-effects.? The doctor I saw about this problem told me that it's possible to have surgery for this, but she doesn't recommend it, as it doesn't always totaly cure the problem.? The result of my visit was,...I was issued co-codamol pain killers, and told to see the doctor again if it begins happening more often.? Can anyone shed anymore light on this for me, because I don't like it happening AT ALL, never mind it maybe begining to happen MORE OFTEN.?

Its called Back Shots! You have something wrong with you spine. I had a blown disc from my ex-husband. Technically he broke my back. I walked around on a broken back for almost 2 years. Until the Back Shots! Why they call them Back Shots is because it feels like someone shot you in the back! I would get a second opinion on this, because they can remove the disc and you will be pain free, no Back Shots!

Let us know how you are doing! All my best, Minxlpn