I was diagnosed with MG in 2010 and have been looking for a place to talk to others that are traveling the same road. When I tell someone why I feel bad sometimes, I get an empty stare. This body has been good to me for many years and now that I have developed MG, I want to be good to my body and help it feel better.
I began treatment with Mestinon and Predisone. What a trip. Within 45 minutes my vision was clear, I could speak clearly, and I felt like a million dollars. Since that time, I have been able to stop the mestinon and change from Predisone to Immuran.
Since leaving Predisone and intrducing Immuran, I feel like I am 100 years old. I ache all over and nothing seems to help. I was walking a mile 5 days a week but now can barely make it from the car to the house.
My Neuro says deal with it, my pc says it may be arthritis..but I was going 90 to nothing before the predisone and Immuran??? Do you have any thoughts?

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways. Check out the following forum for assistance:

http://neurotalk.psychcentral.com/forum77.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

Hi Ms. Diva:

Welcome to Neurotalk.

Just wanted to say hi. Have you searched our forums yet? We have lots.

Others will stop by and welcome you also.

Take care,

Melody

hi motorcycle diva i just found this site today i have mg for 35 yrs now im on imuran and mestinon- 60 mg 2 a day and a timespan 180 mg for bed time and doing pretty well for 35 yrs with mg diginosed at 14, i would love to chat with ya. linda

I know that prednisone is horrible for you. I was on it for a year and hated it. I gained like 30 pounds. Do you think maybe a change in your medicaiton could help? There are other options beside imuran. Why did you stop taking mestinon?