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Old 01-28-2011, 02:21 PM #1
Mike H Mike H is offline
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Default I'm so scared please help.
I just got diagnosed with Trigeminal Neuralgia. I have had a cat scan, and two brain mri's with and with out contrast. They all came back negative, but I am convinced I have a brain tumor. Am I crazy...I'm totally panicking and dont know what to do. please help.



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Old 01-28-2011, 03:09 PM #2
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Hi Mike and welcome to NeuroTalk...here is the link to our TN Forum

http://neurotalk.psychcentral.com/forum26.html

I'm glad you have joined us. This is a great place to exchange information and make friends.
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Old 01-28-2011, 08:49 PM #3
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Smile Hello and Welcome!
Hello Mike H
and
Welcome to Neurotalk!!

I see that Alffe has given you the link to our TN forum...

Please feel free to pull up a chair and stay a while you are also more than welcome to roam around all of the forum and join in anywhere!

If you have any questions or need any assistance please don't hesitate to ask.... someone will always be along to help in any way that we can.

I look forward to seeing you around the board!

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Old 01-29-2011, 01:40 AM #4
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Wink Hello and Welcome!!

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

As you can tell there are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

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Old 01-29-2011, 10:21 AM #5
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Hi

Scared is a normal reaction to bad news, when it's medical.

There's so many people here who have been through those moments, we do understand. It will be ok

There's lots of info here. try the "SEARCH" feature. You will be amazed at the info NT has about TN.

Hope you find some peace today.
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Old 01-29-2011, 10:23 AM #6
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You had a cat scan and MRI. Now you need to hear from doctor. Most I know thought Tumor (big fear!!!) at beginning, my self included before my DX of MS. Of course my doctor was gone on vacation, it was a llloooonnnnng wait. This too shall end. Wait to hear what doctor says. Worry does you no good. "Breathe" my sister in law told me.
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Old 02-04-2011, 01:48 PM #7
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hi mike and welcome to NT,

i agree with kicker. i would tend to believe the tests since they seem to have been comprehensive. however, i'd make an appt with your dr and be honest. talk about your fear and why you feel that way. then let him explain to you what the testing showed and why.

try to take someone with you for a 2nd set of ears.

i'm wishing you well.
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Old 01-28-2011, 08:46 PM #8
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Hello, and welcome to NT! This is such a great place with many friendly, helpful, and caring people.

We're so glad you found us!
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Old 02-10-2011, 12:21 AM #9
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Quote:
Originally Posted by Mike H View Post
I just got diagnosed with Trigeminal Neuralgia. I have had a cat scan, and two brain mri's with and with out contrast. They all came back negative, but I am convinced I have a brain tumor. Am I crazy...I'm totally panicking and dont know what to do. please help.



Mike

Hi Mike, I am new to this site though your letter caught my eye. Have had Trigeminal Neuralgia for 20yrs. Mine started early, only 30 yrs old and they thought it was a brain tumor, then since mine is on the left side they thought is was my heart, then lupis and on and on. Last week I had such a migraine I really thought a blood vessel was going to pop. This awful pain I believe it plays tricks on the brain. Please, do not panic. TN is very painfull and that nerve has so many branches.

Hope you have a beautiful day ~ Brenda1960
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Old 02-10-2011, 01:55 AM #10
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Wink Wonderful to have you with us!

Brenda,

Hello and welcome to NeuroTalk. Happy to see you have come to be with us. Just let us know if we can be of any help.

There are great number and caring fellow members here to assist you. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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