Hi All,

I was hoping I could get some help here ...

Neuro problems are nothing new to me. I've had gluten ataxia, myoclonus, petite mals, insomnia, TIAs, buzzing, brain zaps, etc etc which are under control as long as I avoid gluten and watch my glucose. But now I have a new scarey symptom.

I was at my docs thinking that I was just going to show her what my TIAs looked like but it turned into a major seizure of some sort. And that's why I'm here ... I have no idea what happened and was hoping you could help.

It started out with me feeling a little off like my blood glucose was too low. But drinking some oj and eating a bit of lunch didn't help. I layed down and rested like I do when I'm having a TIA but the internal shakey feelings didn't go away this time ...

After a few minutes, I asked if I could lay down on a recliner and shortly afterwards, I found myself unable to breath without taking huge gulps of air one after the other. My lungs couldn't function any other way ... and that's when all the jerking started. I didn't breath like the the whole time but the feeling like my lungs were shutting down kept coming back.

My whole body was moving at times. I remember that my arms, shoulders and head would all move at one time ... my head would bob up and down or start going side ways ... and my arms would move up and down especially if I was holding them in.

There wasn't any way to stop this ... my brain didn't connect to my body parts anymore ...

Several times, EMTs and nurses told me to stop breathing like I was but it was uncontrollable if I wanted to get oxygen into my lungs ...

sorry for the long story ... does anyone else do this ? and what's it called ?

thanks ... Marcia