New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 03-12-2011, 05:13 PM #1
Marciab Marciab is offline
Junior Member
 
Join Date: Feb 2007
Posts: 17
15 yr Member
Marciab Marciab is offline
Junior Member
 
Join Date: Feb 2007
Posts: 17
15 yr Member
Default

I have a name for this now .. I've known about the nocturnal myoclonus and ataxia connection to gluten for 5 years now. It looks like I had a full blown myoclonic seizure ...

ok, I tried to post a link but this site won't let me ... duh !!! so ... if you google progressive-myoclonic-ataxia-associated-with-celiac-disease you'll find this ...

and this would explain why I'm running into things again / aka ataxia ... I thought the Klonopin was doing this to me ...

bummer ...
Marciab is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (05-10-2011)
Old 03-15-2011, 07:18 PM #2
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default

Quote:
Originally Posted by Marciab View Post
I have a name for this now .. I've known about the nocturnal myoclonus and ataxia connection to gluten for 5 years now. It looks like I had a full blown myoclonic seizure ...

ok, I tried to post a link but this site won't let me ... duh !!! so ... if you google progressive-myoclonic-ataxia-associated-with-celiac-disease you'll find this ...

and this would explain why I'm running into things again / aka ataxia ... I thought the Klonopin was doing this to me ...

bummer ...
Hi Marciab

I just wanted to welcome you and I am so so sorry that you are going through all of his. Others will come along and guide you. We are a nifty bunch of people here. Many know a great deal about their conditions.

Hopefully one of them will post here and you'll get some help.

Take care,

Melody
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (05-10-2011)
Old 03-19-2011, 10:36 AM #3
Marciab Marciab is offline
Junior Member
 
Join Date: Feb 2007
Posts: 17
15 yr Member
Marciab Marciab is offline
Junior Member
 
Join Date: Feb 2007
Posts: 17
15 yr Member
Default

Quote:
Originally Posted by MelodyL View Post
Hi Marciab

I just wanted to welcome you and I am so so sorry that you are going through all of his. Others will come along and guide you. We are a nifty bunch of people here. Many know a great deal about their conditions.

Hopefully one of them will post here and you'll get some help.

Take care,

Melody
Thanks Melody,

I just posted a thread on the epilepsy board. It's " Seizure triggers ? MCS ? Klonopin ?" and thread number 754391#754391 ... Links aren't allowed yet for me ... ...

I'm still confused and really appreciate the kindness here ... Marcia
Marciab is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dmom3005 (05-10-2011)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
PD - yesterday and today reverett123 Parkinson's Disease 14 01-27-2011 04:28 PM
Saw my dr. yesterday fionab SCS & Pain Pumps 1 10-01-2010 01:38 PM
So, Yesterday . . . Nervous PN Tips, Resources, Supplements & Other Treatments 1 08-13-2010 05:06 PM
Saw another OT yesterday Iffynah Reflex Sympathetic Dystrophy (RSD and CRPS) 4 11-15-2008 11:11 AM
Yesterday .......... Nikko Bipolar Disorder 2 07-29-2007 11:15 AM


All times are GMT -5. The time now is 01:02 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.