Linda - I just wanted to say thanks so much for your message. Yes, I too am overwhelmed, but I feel lucky to have found this site with so many people who have such extensive knowledge.

Dear axseptants, Yes, I could spend all my time reading and posting. I really don't have much of a diagnosis, including tests, etc. I have had severak MRI's, but all I know from that it that my back is worse than it was. This may seem off-the wall, but when I had some MRIs, Cat scan, at U. VA. the doc didn't see much when I was lying on my back, but he decided to do one in the sitting position and he saw the herniated disc and an entrapped sciatic nerve, so he did the surgery. I was reassured when his nurse told me he doesn't do surgery unless he has to. I should probably put this on the SC group. It just seemed like a bit of common sense, when he had me sit down. Linda

Im 33 yrs old I have never had any symptoms or major illnesses. One day at work (june 7 th) started to feel dizzy, got real hot, chest palpitating, fingers and hand got numb. I thought i was having a heart attack.Then i passed out for only a min though. I work in a hospital so they took me to ER. They sent me home said i was fine. Next day ended up in ER again, and again they sent me home i was fine. For three days i laid and did nothing. I then decided im living my life. Went shopping with my husband, not a good idea. I almost passed out again, I had to lay on the ground. Later that night i must have pushed myself. I thought i was gonna dye. My heart was pounding.


I called 911, they admitted. I stayed 3 days. Failed tilt table test in 2 mins. They put me on Florinef for a week, no success. Today is day 11 on Atenolol (beta blocker), kinda scary b/c my bp is low to begin w/ 95/65. It get down to 85/58at times. It did lower my heart rate from 115 standing to 85-90. However, it did not solve my problem. I still get the chest and throat tightness, dizzy and lightheadedness, brain fog and confusion all w/ standing only. Im fine laying and ok for the most part sitting. I just cant have my legs hanging. No symptoms until my legs are in a standing position. Does it take awhile for the beta blockers to work? Or maybe i need to try Midodrine (a vasoconstrictor) blood could be pooling in my legs. Did you try Midorine before. I feel like im not getting blood to my head and tht would explain my symptoms.

I am so completely confused and sad. 4 weeks is a long time for me to sit and do nothing. I went from full time job, part time school, being a mom and wife--------to sitting and doing nothing. Where is the cure, research, help? Sorry had to vent.
POTS is maybe the dx

Happy having you come to be with the whole family. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Seems you have been through some ruff times. Please keep us up to date.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

This is so old and you don't seem to be logging in any more which is a shame. For anyone reading this post with similar symptoms....try asking a doctor about Behcet's syndrome. Very similar symptoms to Sjogrens but with the addition of genital ulceration. It's so frustrating that so few doctors seem to have heard of it and the ulceration, which should be a red light to them, goes right over their heads. Anyone with Behcet's is likely to have very unremarkable blood results and scans as the major cause of problems is inflammation.

Hello, and welcome to Neuro Talk. I think your suspicions are correct, about growing up on the farm and being around various poisens. I was exposed alot to DDT while growing up in the 50's in Michigan. At the time DDT was OK for use, so I ate the blueberries right off the bush. Auto immune diseases started at 29 years old. Mayo clinic suspected this as well as contamination of the ground water.
Have you had a T @ B lymphocyte test? That was the one that Mayo clinic found in me to be very abnormal. I am sorry this happened to you also. Keep in touch here, there are lots of us with symptoms similar to how you are presenting. Take good care of yourself. I am on my own too. My son lives near by and he does help me. ginnie