[cathryn grimm]

My sister was diagnosed with Polymyositis. almost 1 1/2 yrs ago. Since than she has been getting worse and worse. She does not leave the house anymore. She is bound to a weel chair, and has lost almost of her hair. She does not know anyone nor any support groups for this dissease. She is lonly and would like someone to talk to who can relate to her. I am her 24 yr old sister she is 27. I miss my happy go lucky sister i knew 2 yrs ago. please if anyone can help me understand what she is going through, And if there is anyone who could help my sister by letting her know that she is not alone i would appreciate it. Please e-mail me happyjoyforme@hotmail.com thank you sooo much.

[Abbie]

Hello Cathryn
and
WELCOME to NeuroTalk!

I am sorry to hear of your sister's struggles! I am thankful that she has a sister like you!!!

I have never heard of Polymyositis so I went on a little search!

I have found a couple of links that may be of interest to you....and hopefully help you.

Cleveland Clinic
http://my.clevelandclinic.org/disorders/Polymyositis/hic_Polymyositis.aspx

General Health Conditions & Rare Disorders
http://neurotalk.psychcentral.com/forum2.html

Neuromuscular
http://neurotalk.psychcentral.com/forum19.html

Please feel free to roam around and join in anywhere! If you have any questions or need any assistance please don't hesitate to ask.... someone will always be around shortly to help you in any way that we can.

I hope to see you around the board.

Abbie

[Darlene]

cathryn,

Happy to see you have come to be with us. There are great and caring friends here to assist you, just let us know how we can be of any help. Hope your sister finds a solution to her problem.Our shoulders are here for support in many ways. Please keep us up to date on your condition & needs.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene