Hi,
My name is Donna and I am new to the group. There are a few people here that I know from the NYC PN support group - Melody & Glenn. Hi Melody & Glenn! (Let me take this opportunity to say that Melody is probably the best baker this side of the Pecos)

I have peripheral neuropathy in my feet and lower legs. I have Waldenstroms, Hepatitis C and vasculitis. The neuropathy led to the Waldenstroms diagnosis, which led to the HepC treatment, which led to a severe exacerbation of my neuropathy, which led to a sural nerve biopsy and the vasculitis diagnosis.

I was treated with massive pred and cytoxan for the vasculitis. Later I started plasmapheresis and rituxan.

I'm frustrated with my treatment and the response to my treatment and some of the uncertainties as to what is causing what and what might help. With multiple diseases, sometimes it feels that everything goes in circles.

I really want to get another neurology opinion and am wondering if anyone has gone as a patient to Wash U in St Louis?

Thanks alot!

Donna Mae