Hi, I have 18 out of 30 genetic defects tested and think I have most of the
genes of autism. I have spent my whole life feeling like the Red Queen constantly running just to stay in place. I take 42 supplements / day and counting, but no drugs. I am very sensitive to chemicals so I never take medications. I have many genetic defects in the methyl cycle (such as CBS++), in the neurotransmitter biochemical pathways (such as COMT ++) and in the ornithine cycle (I cannot make sufficient BH4). I have 3 genes that cause high blood pressure. I have extremely high blood pressure untreated and spent about 9 months with b.p. so high I was afraid a sneeze would cause a stroke before I found a protocol that worked reliably to keep it down. Then it went up again and I discovered after some time that I had a UTI and that will cause a high b.p. if you have the genes for it. The UTI went away when I discovered I was over treating my Vitamin D Receptor genetic defect so lowed my vitamin D dose to get my urinary ph correct. Then you would think I could rest but - no! allergy season came and I have terrific allergies and this year flonase (my only drug) would no longer work, so I started taking high dose 9g/day fish oil to prevent IL-1B (but this does not prevent the histamine which floats around and caused --- HYPOTENSION and HYPOGLYCEMIA!!) All month I have been eating salt like crazy and still having these problems. I am beside myself from being jittery and also it seems anxiety and depression is going along for the ride with these symptoms. Allergy season is over in a week but if it exhausted my adrenals I have no idea how quickly they can recover. Does anyone know about use of P5P in such a situation? I am taking 150mg as it seems I am short of breath like anemic, but 150 is not helping. I read a few places that autistic kids need to take high dose p5p. I only know at ANY time if I take less than 70mg I get short of breath and light headed (anemic) and I've pretty much been taking 100mg my whole life (entire life - forever). I have been self medicating since I was 12 and my Mom did it before that. I just really could use a little help now and then. It just seems like the burden to figure this all out is too much and especially when I am feeling anxiety. Thanks for any help. Also, has anyone ever seen a P5P pill with dose higher than 50mg?

Mad

Mad,

Happy to see you have come to be with us. Just let us know if we can be of any help. There are great and caring friends here to assist you. Our shoulders are here for support in many ways. Please keep us up to date. Check out the following forum for some assistance.

http://neurotalk.psychcentral.com/forum8.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene