Seeking more information/help
 

Greetings all...

New to this forum. Have been dealing with PPS for many years...using water enemas to evacuate every time I have a BM. Sometimes takes hours to complete.
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Any leads would be greatly appreciated.

Thank you

Nice to meet you!!
 

:Wave-Hello: Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. :smileypray:

Darlene :hug:

Testing and treatments?
 

Hi Fullmoon. I have been having problems for nearly a year now and live on laxatives. I am interested in knowing more about how you have spent years and still don't have a resolution, its kind of depressing given that I am coming up to my anniversary of symptoms.

I fell and fractured my sacrum at S3/4, having no pain, it wasn't until I had ambulation issues that I finally had an MRI. I don't know if that is the cause, but all of the nerves for the sphincter come from S3/4.

The anorectal manometry and balloon test is supposed to show sphincter function, did you have that? What other tests did you have?

Have you definitively been diagnosed, do you live in a rural area or a city with better facilities?

Has anyone suggested an Colostomy? They can be temporary and being so distal from the stomach can be irrigated in the morning and a cap placed over instead of a pouch?

Is any "doctor" still following you? Have you seen a colorectal surgeon as opposed to a gastroenterologist? The latter are mostly interested in doing colonoscopies and treating irritable bowel and other such diseases.

Anyway, interested in where you are in the process.
:grouphug:

Non relaxing Puborectalis disorder
 

Hello,
I, too, have this condition. It is awful. I was just seen by a colorectal dr. at Cleveland Clinic. What a joke. She referred me to a pain management specialist. I have non relaxing pelvic floor muscles, not pain. She told me they only give Botox shots to people who are incontinent. I had most testing done: defacacophy, manometry, balloon expulsion, ultrasound, emg. I had PT several times with different therapists, have seen numerous specialists, urogynecologist, ob gyn, GI, colorectal, accupuncure, neurologist. I'm only getting worse. No one wants to do a colostomy. I have incomplete evacuation, go several times in am, struggle to get anything out. It's a nightmare.