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#21 | ||
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New Member
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Greetings all...
New to this forum. Have been dealing with PPS for many years...using water enemas to evacuate every time I have a BM. Sometimes takes hours to complete. ** Any leads would be greatly appreciated. Thank you Last edited by Chemar; 08-10-2015 at 08:57 AM. Reason: NT guidelines |
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#22 | |||
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Legendary
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![]() Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you. ![]() Darlene ![]()
__________________
. "Life without God is like an unsharpened pencil -- it has no point.
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#23 | ||
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New Member
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Quote:
I fell and fractured my sacrum at S3/4, having no pain, it wasn't until I had ambulation issues that I finally had an MRI. I don't know if that is the cause, but all of the nerves for the sphincter come from S3/4. The anorectal manometry and balloon test is supposed to show sphincter function, did you have that? What other tests did you have? Have you definitively been diagnosed, do you live in a rural area or a city with better facilities? Has anyone suggested an Colostomy? They can be temporary and being so distal from the stomach can be irrigated in the morning and a cap placed over instead of a pouch? Is any "doctor" still following you? Have you seen a colorectal surgeon as opposed to a gastroenterologist? The latter are mostly interested in doing colonoscopies and treating irritable bowel and other such diseases. Anyway, interested in where you are in the process. ![]() |
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#24 | ||
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Newly Joined
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Hello,
I, too, have this condition. It is awful. I was just seen by a colorectal dr. at Cleveland Clinic. What a joke. She referred me to a pain management specialist. I have non relaxing pelvic floor muscles, not pain. She told me they only give Botox shots to people who are incontinent. I had most testing done: defacacophy, manometry, balloon expulsion, ultrasound, emg. I had PT several times with different therapists, have seen numerous specialists, urogynecologist, ob gyn, GI, colorectal, accupuncure, neurologist. I'm only getting worse. No one wants to do a colostomy. I have incomplete evacuation, go several times in am, struggle to get anything out. It's a nightmare. |
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