New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!


advertisement
Reply
 
Thread Tools Display Modes
Old 08-10-2015, 12:41 AM #21
fullmoon fullmoon is offline
New Member
 
Join Date: Aug 2015
Posts: 1
8 yr Member
fullmoon fullmoon is offline
New Member
 
Join Date: Aug 2015
Posts: 1
8 yr Member
Default Seeking more information/help

Greetings all...

New to this forum. Have been dealing with PPS for many years...using water enemas to evacuate every time I have a BM. Sometimes takes hours to complete.
**

Any leads would be greatly appreciated.

Thank you

Last edited by Chemar; 08-10-2015 at 08:57 AM. Reason: NT guidelines
fullmoon is offline   Reply With QuoteReply With Quote

advertisement
Old 08-14-2015, 11:50 PM #22
Darlene's Avatar
Darlene Darlene is offline
Legendary
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Darlene Darlene is offline
Legendary
Darlene's Avatar
 
Join Date: Sep 2006
Location: Once a Texan, always a Texan.
Posts: 11,976
15 yr Member
Wink Nice to meet you!!


Hello and welcome, happy to see you have come to be with us, it a great place to be. As you can see we have a great number and caring fellow members here, where you have find a supportive and relaxing place. Have fun looking into the different forums. Our shoulders are here for support in many ways.

Please keep us up to date on your condition. Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
__________________

.

"Life without God is like an unsharpened pencil -- it has no point.
Darlene is offline   Reply With QuoteReply With Quote
Old 08-15-2015, 07:30 AM #23
Frodo-dog Frodo-dog is offline
New Member
 
Join Date: Jul 2015
Posts: 2
8 yr Member
Frodo-dog Frodo-dog is offline
New Member
 
Join Date: Jul 2015
Posts: 2
8 yr Member
Default Testing and treatments?

Quote:
Originally Posted by fullmoon View Post
Greetings all...

New to this forum. Have been dealing with PPS for many years...using water enemas to evacuate every time I have a BM. Sometimes takes hours to complete.
**

Any leads would be greatly appreciated.

Thank you
Hi Fullmoon. I have been having problems for nearly a year now and live on laxatives. I am interested in knowing more about how you have spent years and still don't have a resolution, its kind of depressing given that I am coming up to my anniversary of symptoms.

I fell and fractured my sacrum at S3/4, having no pain, it wasn't until I had ambulation issues that I finally had an MRI. I don't know if that is the cause, but all of the nerves for the sphincter come from S3/4.

The anorectal manometry and balloon test is supposed to show sphincter function, did you have that? What other tests did you have?

Have you definitively been diagnosed, do you live in a rural area or a city with better facilities?

Has anyone suggested an Colostomy? They can be temporary and being so distal from the stomach can be irrigated in the morning and a cap placed over instead of a pouch?

Is any "doctor" still following you? Have you seen a colorectal surgeon as opposed to a gastroenterologist? The latter are mostly interested in doing colonoscopies and treating irritable bowel and other such diseases.

Anyway, interested in where you are in the process.
Frodo-dog is offline   Reply With QuoteReply With Quote
Old 10-19-2019, 09:27 PM #24
Shadow of Past Shadow of Past is offline
Newly Joined
 
Join Date: Oct 2019
Posts: 1
3 yr Member
Shadow of Past Shadow of Past is offline
Newly Joined
 
Join Date: Oct 2019
Posts: 1
3 yr Member
Default Non relaxing Puborectalis disorder

Hello,
I, too, have this condition. It is awful. I was just seen by a colorectal dr. at Cleveland Clinic. What a joke. She referred me to a pain management specialist. I have non relaxing pelvic floor muscles, not pain. She told me they only give Botox shots to people who are incontinent. I had most testing done: defacacophy, manometry, balloon expulsion, ultrasound, emg. I had PT several times with different therapists, have seen numerous specialists, urogynecologist, ob gyn, GI, colorectal, accupuncure, neurologist. I'm only getting worse. No one wants to do a colostomy. I have incomplete evacuation, go several times in am, struggle to get anything out. It's a nightmare.
Shadow of Past is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
desperately seeking nerve imaging info gibbrn Thoracic Outlet Syndrome 18 05-17-2010 01:47 AM
Seeking info on vasovagal syncope and pseudoseizures sunnyboy Epilepsy 2 12-20-2007 09:54 PM
Seeking info on vasovagal syncope and pseudoseizures sunnyboy New Member Introductions 2 12-20-2007 10:23 AM
Seeking objective info, all the way from Brazil Flavio Reflex Sympathetic Dystrophy (RSD and CRPS) 8 09-30-2007 10:27 AM
desperately seeking info michelle zenner New Member Introductions 3 09-27-2007 09:57 AM


All times are GMT -5. The time now is 05:06 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.