Hello,
I, too, have this condition. It is awful. I was just seen by a colorectal dr. at Cleveland Clinic. What a joke. She referred me to a pain management specialist. I have non relaxing pelvic floor muscles, not pain. She told me they only give Botox shots to people who are incontinent. I had most testing done: defacacophy, manometry, balloon expulsion, ultrasound, emg. I had PT several times with different therapists, have seen numerous specialists, urogynecologist, ob gyn, GI, colorectal, accupuncure, neurologist. I'm only getting worse. No one wants to do a colostomy. I have incomplete evacuation, go several times in am, struggle to get anything out. It's a nightmare.