[potato]

I have dealt with several chronic medical diagnosis for the past few years, including heart disease, protein c defienency, firbomylagia. About month ago I was given several tests and was given the diagnosis of Unspecified Hereditary Ideopatic Perripheral Nueropathy. Walking was shaky=painful and overall weakness. I struggle everyday and most people I know do not understand my problem. Just lookng for some kindred spirits who can be walking in my shoes.

[floppychops]

Hi there potato! I also was diagnosed with PN last month and immediately took everyones advice here and started on vitamin B12. It definitely makes a difference! I am so glad you are here and I'm sure you will meet lots of great people here! Welcome!

[Darlene]

Potato,

Happy to see you have come to be with us. As you can tell there are great and caring friends here to assist you, just let us know if we can be of any help. Our shoulders are here for support in many ways. Please keep us up to date on your condition & needs. check into the following forum for some assistance.

http://neurotalk.psychcentral.com/forum20.html

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene

[(Broken Wings)]

Welcome to NT

Glad you found us.

I'm sure there's lots of helpful people here who have PN for you to get to know. I do not suffer from that but understand that to be very debilitating and painful.

I pray you find some relief.

Keep in touch...

I've had increasing exhaustion + pain in joints & muscles for the past decade, which coincides with statin use. Also memory loss. I went off the drug for 3 mo but the probs didn't even diminish. They found a protein C deficiency during extensive testing but never got to any diagnosis.

That was 4 yrs ago. My MD put me on Aricept (Alzheimer's runs in my family & I carry the gene) & my memory improved. I'm still convinced the joint & muscle pain is statin related because every time he increases the dosage or changes to a stronger statin my misery increases.

Most people think my problems are just one: I'm old! I'm 65. When this started I was 55. NOT so old. But that's still what "they" thought. Don't know what they would've thought if I'd been 30. That I was lazy? Maybe.

But you're right. People out there don't understand. People here do. So welcome here, potato. You've found a home base.

I hope you checked out the PN link Darlene gave you--looked at the different threads, introduced yourself there, asked questions, followed up some of the resources. Knowledge IS power!

[NurseNancy]

hello and welcome to NT.
you've gotten some great suggestions. i know you'll find a forum that's perfect for you.

there's tons of knowledgeable and support people here.

[potato]

Thank you for the advice. I have been taking vitamin b 12 since gastric bypass 12 years ago. That level is checked throughout the year. So glad you wrote to me.

[potato]

Originally Posted by (Broken Wings)

Welcome to NT

Glad you found us.

I'm sure there's lots of helpful people here who have PN for you to get to know. I do not suffer from that but understand that to be very debilitating and painful.

I pray you find some relief.

Keep in touch...

I don't know how to accept you request to be my friend. It's all new to me.