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Old 09-12-2014, 07:38 PM #1
tr4cy tr4cy is offline
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Default anyone with multiple spontaneous csf leaks

Hi I'm new to your group and wondering if anyone has had an experience similar to mine? 3 n 1/2 mths ago after working in my yard I woke the next morn with killer headache n couldnt move my neck. After numerous dr visits head n neck not better, vomiting, eye n ear disturbances I was referred to the Mayo Clinic(which us a great facility btw) spinal tap measured 13 which he said was normal, brain mri normal except for mild fluid in sinuses but the meleogram showed excessive csf leaks all over spine from neck to lower back and couple large fluid collections. Surgery not a option he said there are too many leaks. He ordered blood patch n said I would prob have more. Received it a week ago symptoms just different not better.I cant find much info on this out there.is anyone else in this boat with me its really got me down
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Old 09-12-2014, 09:21 PM #2
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Hello tr4cy,

Welcome to the NeuroTalk Support Groups.

I see you've found the CSF Leak forum

If you need any help finding your way around the forums, or need assistance in any way, please just post again and someone will help you.

take care.
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Old 09-12-2014, 11:36 PM #3
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Wink Hello & Welcome!!


tr4cy,

Happy to see you have come to be with us. As you can tell there are great and caring friends here to assist you, just let us know if we can be of any help. Our shoulders are here for support in many ways.

Again welcome, looking forward to seeing you around. My thoughts and prayers are with you.

Darlene
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Old 09-13-2014, 05:08 AM #4
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Welcome to Neurotalk tr4cy.

I hope you get some answers soon.
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Old 09-13-2014, 09:09 AM #5
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Welcome tr4cy.
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