[cinusti]

Hi all

I'm a 60+ grandmother living in Queensland, Australia

Have looked at this site previously as I thought I might hav MS, but didn't join at that time.

Saw a neurologist on March 2. Sent me for an MRI which showed no demyelination so I was told to come back in six months time.

As I was still feeling really ill I asked my referring doctor for a referral to another neurologist. Saw her (Neuro) on Thursday still convinved that I have MS. She also told me that there were no signs of MS on the MRI.

I was feeling rather upset because I felt there is definitely something wrong with me. It wasn't until she started examining my eyes and noticed that I have a droopy right eyelid that her manner changed and she asked me to have a blood test and to call her in 2 weeks time as it would take that long for the results to come back from Sydney. The neuro is in Brisbane.

The tests she asked for said ACHr Ab and CK. As I didn't know what the first one stood for; but I knew that CK was for creatine kinase, so I did a search for creatine kinase and found that the other test is for Acetylcholine receptor antibodies.

Acetylcholine receptor antibodies are found in myasthenia gravis and apart from the fact that I also have muscle pain, my other sypmtoms also fit.
Have since found out that a medication I was taking for the Chronic Fatigue I thought I had is contra-indicated in MG and causes the muscle pain.

There are other medications that I have had problems with in the past and I discovered that they are no-nos in MG.

That's all from me for now

Regards
cinusti

[Chemar]

welcome to NeuroTalk cinusti

we have some other members here from OZ too

hope you find answers and effective treatments to help with your condition

[michael178]

Sounds like you found a good neurologist. My 2nd neurologist was like the one you are seeing, she told me that she had doubts about my Dx of MS, and she turned out to be correct.

[jccgf]

Hi cinusti~

Have you been tested for celiac disease (another autoimmune disease) or B12 deficiency yet? These can both present with MS/MG symptoms, too. I also know a couple of people who have both MG and celiac disease.

My daughter had symptoms of drooping eyelids and other neurological symptoms. Her eye doctor suggested testing for MG, but we had just found her gluten sensitivity, and all of her neurological symptoms resolved on a gluten free diet...making further testing unnecessary.

You can find more information on gluten sensitivity and B12 deficiency in the link below my signature, or stop in the vitamin, nutrients, herbs and supplement forum and/or gluten sensitivity/celiac disease forum here... if you are interested.

Good luck~

Cara

[Lara]

Hi cinusti,
Always nice to see another aussie on board.

[Julie]

Hi Cinusti and welcome to the forum!