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(Broken Wings) 08-28-2011 06:37 AM

Hi, and welcome

You're going in the right direction.

I do hope you find answers soon.

Take care...

elmwood 09-02-2011 02:42 PM

Quote:

Originally Posted by Koala77 (Post 798949)
I'm sure that BlueCarGirl meant well elmwood, but I do not believe that Rare Diseases is the right forum for you. Men's Health is where I suggest you post, and as you have already posted there .... hopefully you'll find that forum again easily.

Those links I gave you and the ones that glenntaj gave you are links to specific educational data, and as that is what you came here looking for, I hope you find them beneficial.

Unfortunately our Men's Health Forum has been rather quiet lately but should you continue to ask any questions over there, hopefully others will see it and come help you out. I look forward to hearing how you get on.

Thanks again. I actually haven't posted on the Mens Health site (at least not intentionally). I'll do that now. I actually saw a neurologist yesterday at one of the top hospitals in the U.S. and they said my condition is not neurological in origin. Seems kind of strange considering the horrible tingling i'm having.

Anyway, I'll try the forums you mentioned. The other educational sites you forwarded to me were very helpful. Thanks again for going out of you way to do that for me.

Elmwood

mrsD 09-02-2011 03:51 PM

I would really look at your remission in detail. What changed then? Activity/sports issues, changing?.
Things like that.

This tingling...is it the skin, or deeper inside?

Many men compress nerves by sitting on hard surfaces, or doing bicycling at length.

The fact that you improved for a while (and 3 yrs is quite a remission) then had a return, lends me to think you need to be a detective to see what was happening in your life/heath during those times.

elmwood 09-16-2011 05:42 PM

Yeah i've thought about it at length believe me. Can't really come up with any changes other than maybe stress that could trigger it. I know stress can do all sorts of crazy stuff but this seems a bit extreme, especially since not being stressed out doesn't seem to do much good. Oh well.

Thanks

pabb 09-17-2011 07:36 AM

Quote:

Originally Posted by elmwood (Post 806102)
Yeah i've thought about it at length believe me. Can't really come up with any changes other than maybe stress that could trigger it. I know stress can do all sorts of crazy stuff but this seems a bit extreme, especially since not being stressed out doesn't seem to do much good. Oh well.

Thanks

mrsD beat me to it! Not unusual, lol. You need to think deeply and critically about any and all changes in lifestyle, food, living arrangements (partners etc), when this remission occurred and you need to go back AT least three months before you noticed the remssion taking place.
Did you move? Did you change partners? Did you buy new mattress? Did you have major dietary changes? Did you have medication changes? Any change in job/work station? Driving more or less. Change in exercise habits? Wt gain/loss? Change in usual clothing? Environmental exposure to toxins, I know this one in particular seems a stretch, but if you have some damage to that nerve, it would be the sensitive spot in your body for toxins...Has you blood pressure been up/down? Has anyone checked the blood flow to that area? including your lower back?.....There you go, get going, lol. Good luck

elmwood 09-17-2011 11:39 AM

Those are all good thoughts. At the time of remission not much had changed. I'd been working in the same job and living in the same house for 2 years or so. I'd had different partners but its definitely not sexually transmitted. It must be damage of some sort considering the only time i ever get the tingling without fail is when I yawn. This has got some curious looks from the doctors. But I had an MRI last week to see if there is any damage or unusual stuff going on in there. We'll see but I really don't expect them to find much. I guess thats a natural feeling when you've had so many let downs over the years.

njmama09 09-19-2011 07:45 PM

Have you seen a gastroenterologist or colorectal doctor? Your rectum sits right there on that space and it could be a hernia, they'd need to ultrasound it or CT scan to be sure. You said it tingles when you yawn, does it tingle when you cough? Coughing can put pressure on a hernia, thats why the doctors grab 'em and make you cough during a physical, to check for hernias in the scrotum, but they can occur anywhere. It might only be bulging through when you yawn or stretch that area, which they won't see when your at rest in an MRI or a CT scan.

I'd see a colorectal specialist, a quick sigmoidoscopy could help solve the problem, or at least rule out a few things.


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