[Sobermouse]

I don't know how this thing really works but I am feeling a little hopeless, helpless, powerless, scared, and lost. My husband is 44 years old, on April 4 2011 he had what appeared to be a stroke but the CT scans and MRI's came back negative. He was in the hospital that time for 8 days and was discharged still unable to walk, with a diag. of early onset Parkinsons and inner ear issues. After being home a day he had another "episode" and was tranferred out to a larger hospital in a bigger city- they diag. him with Ataxia, and again, all the scans came back negative. This continued to happen, 4 times (he has atrial-fib and had a cardioversion in the middle of this)...he had an 'episode,' we called 911, they took him to the local hosp then transferred him out...we never thought about "seizures" until they diag him with non-epileptic seizures. His follow-up appointment with the head of neuro said it looks like epilepsy, and sounds like epilepsy but it's not epilepsy b/c the EEG's were normal (of course, he didn't have a seizure during the EEG's) so they started him on Topiramate "just to see." The seizures stopped for 8 weeks, during which we seen a different neurologist (b/c of Insurance) who says that he clearly had a stroke in his brain stem and the damage from that was causing the seizures (still awaiting tests). The new doc said that anything 5 mm or smaller wouldn't be detected on MRI or CT. He was doing good, not even dizzy anymore then booom!!! Yesterday they came back. His list of neuro symptoms is pretty long so I won't list them all but they always start with being very dizzy, feeling very heavy (like he weighs 600lbs), then blurred vsn, then double vision, then he's gone- unable to walk and his whole body goes in and out of muscle spasms. It takes the whole process pre-seizure, and post-seizure on average 7-8 hrs. He's feeling very depressed, hopeless, and lost (just like me). I try to be positive and help him not slide into a deep depression but I'm feeling pretty helpless here- this has been a nightmare and we 'thought' it was over...we just started to let go of some of the fear and now their back...Any advice, anything....anyone out there that has went through anything similar??????