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Old 04-30-2007, 05:49 PM #1
doxey doxey is offline
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Join Date: Apr 2007
Posts: 1
15 yr Member
doxey doxey is offline
New Member
 
Join Date: Apr 2007
Posts: 1
15 yr Member
Default New member with idiopathic neuropathy

Hi all. I'm a new member and have been diagnosed with idiopathic (cause unknown) small fiber neuropathy. It came on suddenly 4 months ago. I have severe nerve pain that comes and goes in feet, lower legs, hands and forearms; as well as a lesser nerve pain that comes and goes over the trunk of my body. I've lost some sensation of touch over the majority of my body. A long list of blood tests have been done (all negative); the glucose tolerance test was negative for diabetes. The only test that came out positive was the one for nerve damage. There's no muscle damage at this time. I've seen 2 neurologists - both tell me to learn to live with the condition, and get thru each day with pain pills. I'm 53 years old, so that's a lot of pain pills in my future! I've concluded that if answers aren't obvious, doctors prescribe meds. So I'm doing the research on my own, and in the near future I'm trying to rule out celiac disease and mercury poisoning. I'm also having hair analysis done - if anyone can recommend a hair analysis lab that they trust, I'd appreciate that info. Any other thoughts or directions to go would be appreciated. I'm a newbie at this research effort, but do believe the answer is out there. So your thoughts are greatly welcomed.
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