[beatnrsd]

Hi, new to NeuroTalk.....

I am very wary, I admit; but it's like a perverse need to be understood...the exhaustion that follows the pain.

I have RSD. Hip surgery on April 15th. Officially diagnosed in September--but everyone knew it; like the elephant in the corner of the exam room NO ONE would talk about. Finally, I went, in a rare move, outside the hospital system I usually use, and received almost immediately--thanks to photographs which I had dated, etc, the the journal of symptoms.

Multiple meds, multiple procedures = no relief. Deathly allergic to iodine. Horrible reaction to steroids. Ugh.

Ok, I am learning about that but already they want to do a spinal cord stimulator' and failing that, an intrathecal pump. My body is stubborn, and thanks to a chronic bone condition, I've got a bit of a tolerance...and

YES!!!! I have done several "med holidays" to clean out my system and reduce my tolerance. But neverthelless, here I am.

Before developing RSD, I've had multiple nervous system insults--which increases your likelihood of developing RSD. Not a hip replacement, and without a complicated explanation, long period of immobilization--reads like a book.

Now I need at least 2 surgeries plus a scar revisions, without which, I am going to continue to get skin infections, two of which have been MRSA.

Also--what kind of RSD-er would I be without gastrparesis?????

1. Thoughts on stimulators (basically, it's in both legs-entire rt. leg, lower left leg.

And the hits just keep on comnng!!!