Quote:
Originally Posted by Rrae
Forgive me, but what does HSAN stand for? I read your profile page and see that you've been having quite a time of it. I'm so sorry. At least here, you know that you're not alone. I felt completely lost until I found Neurotalk. I live in a small community and nobody seemed to understand what I was going thru.
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HSAN is Hereditary Sensory Autonomic Neuropathy. It's for the most part a sensation inhibitor disease and I've seen several people in the forum with Type 1, which is also known as Charcot-Marie Tooth syndrome (CMT).
There are a few different forms but all are connected to some kind of sensation loss with severe temperature sensitivity. I have severe temperature sensitivity but I do not have any sensory/sensation loss and my temperature sensitivity is not hereditary. I was told there has been some reports with more rapid onsets of HSAN, of severe hyperactive non-epileptic type seizures that get very aggressive, but I haven't had any I think were like that, yet.
If anyone wants to read further, there is a wikipedia page on HSAN - **
11-26-2011, 02:19 PM
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